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About Amyloidosis Research Consortium

The Amyloidosis Research Consortium (ARC) is a 501c (3) nonprofit organization founded in 2015, harnessing the power of collaboration and innovation to advance science and both improve and extend the lives of those with Amyloidosis. We are dedicated to transforming the way research is being done and focus on what will have the most significant impact on improving the lives of amyloidosis patients. We forge collaborations across industry, research, clinical care, and regulatory to address unmet need and accelerate the discovery of new treatments. ARC empowers and supports patients by ensuring they have access to the best quality care and information.

Amyloidosis is the term for a group of rare diseases in which an abnormal protein misfolds and deposits as amyloid in organs and tissues, causing damage and eventually organ failure. There are different types of Amyloidosis, and they vary from one another in their biochemical nature and natural history. Some are acquired, and others are inherited. In the United States, approximately 4,000 people develop Amyloidosis each year. It is currently recognized to be wildly underdiagnosed, and therefore that number is expected to rise significantly.

To learn more about ARC, visit


About the Position

As a member of the leadership team, the Director of Finance and Operations will report directly to the CEO, and will play a critical role in creating and achieving our organization-wide strategy, priorities, goals, and ensuring the financial stability of the organization. The Director of Finance and Operations will lead the organization’s financial management and reporting systems and advise the Board and management team on matters relating to financial systems, budget execution, compliance, and long-term planning.

ARC has grown considerably in the past year and the Director of Finance and Operations will play a critical role in evaluating the effectiveness and long-term fit of its existing systems and processes against its strategic plan and future growth goals. This is an ideal opportunity for an entrepreneurial and operationally minded experienced professional to shape the systems, and 2 process of a growing organization to optimize productivity and performance to ensure it achieves its mission.

This is a full-time, benefit eligible position and an exciting opportunity to work in a fast-paced environment with a team that values a diversity of experience & background and a solid commitment to the rare disease community.


Key Responsibilities:


  • Lead the development of the organization’s long-term financial strategy, including financial models, analyses, forecasts to ensure strong financial health and financial sustainability for the organization
  • Oversee the annual finance planning/budgeting processes and prepare the annual operating budget. Work with staff and board to develop/implement program and organizational budgets.
  • Oversee the annual finance planning/budgeting processes and prepare the annual operating budget. Work with staff and board to develop/implement program and organizational budgets.
  • Manage accounting needs and all aspects of the annual audit; appointing auditors and accounting services to support operational needs.


  • Develop critical organization-wide systems, and SOP’s ensuring that technology and staff work effectively across in office and remote working environments.
  • Identify opportunities for operational improvements, including ways ARC can streamline or bring in house systems and processes currently provided by vendors.
  • Manage selection, improvement, integration and/or maintenance of critical operating platforms; currently Salesforce, Box, Microsoft Office, Zoom, Wrike, Teams, Slack


Key Qualifications

  • 7+ years of professional experience, with demonstrated success leading aspects of the finance and operations function in the nonprofit space
  • Experience and ability to lead the finance function and serve as a thought partner and advisor to the Board and management team
  • A talented project manager that has experience evaluating and implementing administrative strategies and related plans, tools, and processes
  • Ability to develop, and implement process improvements, system overhauls and solutions to ensure organizational efficiency and effectiveness; leverages exceptional organizational, time and task management skills as well as prioritization skills
  • Demonstrated ability to set strategy and lead the implementation of new systems and processes to ensure adoption and effectiveness
  • A keen intellect, with the ability to be an independent thinker and creative problem solver
  • Exceptional interpersonal skills, with a solid ability to manage up and laterally
  • Strong written and verbal communication skills, ability to generate communications for both internal and external audiences
  • Familiarity and comfort devising and establishing IT policies, systems, and processes that support broader organizational strategies
  • Proven ability to integrate new technologies, systems and practices into existing infrastructure

This is an exciting opportunity to work at a growing organization with a team that values a diversity of experience and demonstrates an unwavering commitment to the amyloidosis community.

How To Apply
Applications are reviewed on a rolling basis. To apply, please send a resume, cover letter, and writing sample to Grace Fan at gfan@arci.orgEmails without a cover letter and writing sample will NOT be considered.


Please ensure that your resume, cover letter, and writing sample are sent as Word or PDF documents with the titles “your name cover letter”, “your name CV”, and “your name writing sample.” Please put “Director of Finance and Operations – Your Name” in the email subject line. Please let us know where you saw the post advertised. Thank you!


Additional Information


Office Hours & Requirement
This position is full-time, exempt, 40 hours per week, Monday – Friday 9-5 pm.

ARC will require that all employees are vaccinated with exceptions for medical and religious accommodations. ARC may require proof of vaccination. This role is hybrid schedule eligible with a working arrangement of 40% on-site at our Newton office. Preference given to applicants located in Greater Boston Area.

Interview Process
Please note that we are currently conducting the majority of interviews and onboarding remotely and virtually. We appreciate your understanding.

Benefits Package
We offer a competitive benefits package including generous paid time off, health insurance, dental, vision, Long Term Disability, Life insurance, and more.

  • Paid Time Off: Generous paid time off including holidays, sick leave, and vacation time.
  • Medical/Dental/Vision: We offer a full range of contributary medical plans, dental & vision plans; all coverage begins as of your start date, no waiting period for new hires.
  • Life/Disability: 100% employer-paid Life and AD&D plan, and Long-term Disability plan.
  • Flexible Spending Accounts (FSA): Offer both Health FSA & Dependent Care FSA.
  • Other benefits such as Employee Assistance Program (EAP), Worker’s Compensation, and more.


Equal Employment Opportunity
We are proud to be an equal opportunity employer – and celebrate our employees’ differences, regardless of race, color, religion, gender, sexual orientation, gender identity, national origin, age, disability, or Veteran status.