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About Amyloidosis Research Consortium

The Amyloidosis Research Consortium (ARC) is a 501c(3) nonprofit organization founded in 2015, harnessing the power of collaboration and innovation to advance science and both improve and extend the lives of those with Amyloidosis. We are dedicated to transforming the way research is done and focus on what will have the most significant impact on improving the lives of amyloidosis patients. We forge collaborations across industry, academia, clinical care, and regulatory to address unmet needs and accelerate the discovery of new treatments. ARC empowers and supports patients by ensuring they have access to the best quality care and information.

Amyloidosis is the term for a group of rare diseases in which an abnormal protein misfolds and deposits as amyloid in organs and tissues, causing damage and eventually organ failure. There are different types of Amyloidosis, and they vary from one another in their biochemical nature and natural history. Some are acquired and others are inherited. In the United States, approximately 4,000 people develop Amyloidosis each year. It is currently recognized to be wildly underdiagnosed, and therefore that number is expected to rise significantly.

To learn more about ARC, visit


About the Position

Are you looking for a meaningful role?

Interested in working with a motivated, thoughtful, creative, and friendly team to make a difference?

ARC seeks a full-time Director of Strategic Partnerships to lead the Community Alliances and Stakeholder Engagement Department. The Director will be responsible for working with key stakeholders across companies, academia, non-profits, research funders, health care providers, and within the community of patients to build collaborative relationships in alignment with ARC’s mission. Focus areas within the Department include:

The Director will oversee all programs, be responsible for synergistic alignment, and will build effective partnerships across stakeholder groups to support targeted programming that meaningfully improves the amyloidosis landscape, with a focus on enhancing scientific and medical understanding of disease, increasing the speed of accurate diagnosis, improving patient care, and reducing health disparities across all types of amyloidosis.

Reporting to ARC’s CEO, the Director of Strategic Partnerships will independently execute programs with minimal supervision. As part of the leadership team this position will assist in the annual planning process and development of ARC programs of work, including identifying strategic opportunities, conceptualizing new project plans, developing existing programs of work, and auditing and evaluating program performance. The Director will manage and empower a small team, fostering a culture that is collaborative and encourages innovation and action.

The ideal candidate must be a self-starter, have the ability to effectively manage and activate teams, be a strategic thinker that can identify new opportunities and successfully build, mobilize, and manage programs to achieve collective impact and shared goals.

This is an exciting opportunity to work at a growing organization, with a team that values a diversity of experience and demonstrates an unwavering commitment to the amyloidosis community.


Key Responsibilities:

  • Develop and foster relationships with key external stakeholders, including life science companies, medical and scientific institutions, academic societies, research funders, and partners in both the amyloidosis and broader scientific landscape to identify key opportunities across areas of interest that are aligned with ARC’s Mission;
  • Oversee the effective and successful execution of cornerstone initiatives at ARC, including the ASPIRE Amyloidosis Industry Collaborative, ensuring that the strategic near and long-term goals are delivered upon in a high-quality, measurable, and impactful way, within budget, and that outcomes are disseminated across multiple channels through publications, presentations, and pilot programs;
  • Develop and expand ARC’s health equity strategy and associated programs of work that measurably impact areas of unmet need;
  • Guide the expansion and implementation of ARC’s health care provider resources and programs, leveraging ARC’s Amyloidosis Nurse Collaborative, medical education symposia, and the development of a network of clinical center relationships;
  • Oversee ARC’s patient support and education programs, including ARC’s webinar series, written and digital informational materials, and the incorporation of the patient experience into all functions across ARC;
  • Design, manage, and execute community convenings, including organizing and facilitating events, synthesizing discussions, managing deliverables, and disseminating post-event communications and progress;
  • Proactively build and maintain a deep understanding of the amyloidosis landscape, including key stakeholders, knowledge of current diagnostic and treatment approaches, and the research landscape;
  • Help strategically position ARC as a leader in the rare disease field through the evaluation and assessment of new project ideas, proposals, thought leadership pieces, and public speaking opportunities;
  • Contribute to program plans, budget, and key performance indicators as part of the annual internal planning process and for presentation to ARC’s Board of Directors;
  • Identify and procure funding opportunities by developing project concepts and the case for support. Collaborate with relevant colleagues on proposal development;
  • Assume other duties and responsibilities, as guided by ARC’s CEO, that are appropriate to the position.


Skills & Experience

  • Highly effective leadership, self-starter, and a strong willingness to collaborate; seasoned non-profit leader with 7-10+ years of experience.
  • Demonstrated track record of successfully designing, managing, and delivering programs through cross functional and multi-stakeholder teams.
  • Fluency with scientific terminology and comfort facilitating and synthesizing scientific discussions with leading experts.
  • Strong interpersonal skills and the ability to build relationships with internal staff, external experts, and other stakeholders to collaborate on programs of work.
  • Effective organizational skills, including ability to set goals and align priorities, perform and prioritize multiple tasks, exercise good judgment, and quickly identify and resolve challenges.
  • Ability to work both independently and collaboratively as part of a team within a dynamic work environment that includes virtual teams.
  • Excellent verbal and written communication skills, including presenting and public speaking; ability to represent the organization to senior leaders in industry and government in a professional manner.
  • Passion for non-profits, health equity, patient engagement, and cross-sector collaboration. Ability to be flexible, compassionate, and creative, while having a sense of humor.
  • Experience utilizing MS Office, Salesforce, project management tools such as Wrike, Smartsheet, or Microsoft Project.
  • Bachelor’s Degree with 7-10+ years of experience and/or Master’s Degree with equivalent experience, preferably in research, public health, rare disease, and/or life science industries.


How To Apply
Applications are reviewed on a rolling basis. To apply, please send a resume, cover letter, and writing sample to Grace Fan at gfan@arci.orgEmails without a cover letter and writing sample will NOT be considered.


Please ensure that your resume, cover letter, and writing sample are sent as Word or PDF documents with the titles “your name cover letter”, “your name CV”, and “your name writing sample.” Please put “Director of Strategic Partnerships – Your Name” in the email subject line. Please let us know where you saw the post advertised. Thank you!


Additional Information


Office Hours & Requirement
This position is full-time, exempt, 40 hours per week, Monday – Friday 9-5 P.M. ET.

ARC will require that all employees are vaccinated with exceptions for medical and religious accommodations. ARC may require proof of vaccination. This role is hybrid schedule eligible with a working arrangement of 40% on-site at our Newton office. Preference given to applicants located in Greater Boston Area.

Interview Process
Please note that we are currently conducting the majority of interviews and onboarding remotely and virtually. We appreciate your understanding.

Benefits Package
We offer a competitive benefits package including generous paid time off, health insurance, dental, vision, Long Term Disability, Life insurance, and more.

  • Paid Time Off: Generous paid time off including holidays, sick leave, and vacation time.
  • Medical/Dental/Vision: We offer a full range of contributary medical plans, dental & vision plans; all coverage begins as of your start date, no waiting period for new hires.
  • Life/Disability: 100% employer-paid Life and AD&D plan, and Long-term Disability plan.
  • Flexible Spending Accounts (FSA): Offer both Health FSA & Dependent Care FSA.
  • Other benefits such as Employee Assistance Program (EAP), Worker’s Compensation, and more.


Equal Employment Opportunity
We are proud to be an equal opportunity employer – and celebrate our employees’ differences, regardless of race, color, religion, gender, sexual orientation, gender identity, national origin, age, disability, or Veteran status.