On 23rd February 2016, under the leadership of Mike Zelin, the ARC’s Director of Industry Relations, we held the first meeting of the ARC Industry Advisory Council. This groundbreaking meeting brought together key leaders from seven pharmaceutical companies. These companies...
A New Era, Creating A New Model The launch of the Amyloidosis Research Consortium (ARC) earlier this year was in direct response to this pivotal moment in the history of amyloidosis. With potentially effective therapies for amyloidosis on the horizon,...
The Amyloidosis Research Consortium (ARC) held an amyloidosis patient forum with the FDA in Silver Spring, MD on November 16. 2015. It was an historic, standing room only event for our community. The room was filled with patients that were...
This poster detailed the experience of hereditary ATTR and wild-type TTR amyloidosis patients. It outlines the significant challenges for obtaining a correct diagnosis and access to appropriate therapy. The poster was shown at the 1st European Congress on Hereditary ATTR...
Amyloidosis Research Consortium Calls For Regulators To Adopt New Surrogate End Point For Pivotal Clinical Trials In Patients with AL Amyloidosis Cardiac functional biomarker is a validated end point used universally by amyloidosis specialists to determine treatment outcomes and to...
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The dedicated team behind the transformative initiatives of ARC discuss the impactful work of the Leadership, Research, Development, Communications, and Community Alliance departments.
View the webinar recording to gain firsthand knowledge about the projects successfully accomplished in 2023 and get a sneak peek into the exciting new initiatives poised to shape our mission in 2024.
Original Presentation Date:
December 13, 2023
Key Webinar Highlights:
0:00 — Introduction
2:04 — ARC’s Background and History
4:45 — Shaki, Clinical Care and Education Associate
6:57 — Laura, Executive Director of Development
11:16 — Sabrina, Senior Research Manager
14:01 — David, Director of Strategic Programs, Engagement and Communications
18:53 — Kristen, Executive Director of Research
22:39 — Reuben, Associate Director of Strategic Initiatives