Leadership
The ARC team is deeply committed to amyloidosis and works tirelessly to deliver our programs which are fully integrated across the entire research and development continuum and into the clinic. These closely align with our mission, and focus on the areas that are most important, can best be delivered by ARC and are most likely to have the biggest impact on patients, short- and long-term.
Isabelle Lousada, Founder and CEO
Isabelle Lousada has been the driving force behind ARC, building successful collaborations and programs across the sectors to advance the science and understanding of the amyloidosis diseases.
Isabelle was diagnosed with AL amyloidosis, and was one of the first patients to successfully undergo a stem cell transplant. For the past twenty years she has been committed to empowering other patients while serving on several boards and committees, speaking at leadership meetings and key events to encourage research, increase access, and support the critical and unmet needs of amyloidosis patients.
Our Team
ARC staff are proud to work every day to improve and extend the lives of those with amyloidosis.
Ana Carolina Kazemzadeh, Project Manager
Erin Poyant, Senior Manager of Education and Awareness
Grace Fan, Director of HR and Administration
Jamie Zigterman, Associate Director of Research
Jennifer Greenman, LCSW,
Clinical Care & Education Manager
Clinical Care & Education Manager
Johnny Rosa, Marketing & Communications Manager
Kaushik Ghosal, Director of Business Development and Strategic Partnerships
Kaye Gooch, MSW, Director of Community Programs
Kevin Palmer, Director of Finance and Operations
Kristen Hsu, Executive Director of Research
Megan Glynn, Senior Program Manager for ASPIRE
Phaedra Johnson, Director of Research
Sabrina Rebello, Senior Research Manager
Board of Directors
Sarah Cairns-Smith, Board Chairman
Senior Partner and Managing Director, Boston Consulting Group
Dena Heath, Board Secretary
Facilitator, Northern California Amyloidosis Support Group
Norm Shore, Board Treasurer
CEO, Patient Discovery
Raymond Comenzo, MD
Director, Transfusion Services; Director, John C. Davis Myeloma and Amyloid Program; Professor, Tufts University School of Medicine
Isabelle Lousada
Founder and CEO, Amyloidosis Research Consortium
Ashutosh Wechalekar, MD
Professor of Medicine and Haematology, University College London
Lauren Strickland, DO
Breast Oncology Surgeon, Valor Oncology
Mark Guidinger
Owner & President, Towering Pines Investments, LLC
Halley Faust, MD
Preventative Medicine Specialist, University of New Mexico
Kena Thompson
Director of Investment and Asset Management, Solis LLC
Giampaolo Merlini, MD, Emeritus Board Member
Director, Center for Research and Treatment of Systemic Amyloidosis, and of the Biotechnology Research Laboratories, Scientific Institute Policlinico San Matteo, University of Pavia, Italy
Scientific Advisory Committee
A multidisciplinary team of experts in the field of amyloidosis oversees the ARC’s scientific agenda and strategic direction.
Raymond Comenzo, MD
Director, Transfusion Services; Director, John C. Davis Myeloma and Amyloid Program; Professor, Tufts University School of Medicine
Angela Dispenzieri, MD
Consultant, Division of Hematology; Serene M. and Frances C. Durling Professor of Medicine and of Laboratory Medicine and Pathology; Hematology Research Chair, Mayo Clinic College of Medicine
Jeffery Kelly, PhD
Lita Annenberg Hazen Professor of Chemistry, Scripps Research
Ashutosh Wechalekar, MD
Senior lecturer and honorary consultant hematologist, University College London and the Royal Free London NHS Foundation Trust
Mathew Maurer, MD
Arnold and Arlene Goldstein Professor of Cardiology at Columbia University Irving Medical Center, Vagelos College of Physicians & Surgeons, director of the Clinical Cardiovascular Research Laboratory for the Elderly
Giampaolo Merlini, MD
Director, Amyloidosis Research and Treatment Center and Biotechnology Research Laboratories, University of Pavia
Vaishali Sanchorawala, MD
Professor of Medicine; Director, Amyloidosis Center; Director Stem Cell Transplantation Program, Boston University School of Medicine and Boston Medical Center
Patient Advisory Committee
A diverse group of individuals living with or caring for a loved one with amyloidosis helping center ARC programs and key strategies on patients' needs and perspectives.
- Alison Keenan
- Butch Champs
- Carla Turner
- Desiree Love Holliday
- Giselle Benmoin
- James Harrison
- Joseph Phillips
- Kathy Burda
- Linnie Newman
- Mervyn Carr
- Michael Jennings
- Mike Lane
- Reva Dolobowsky
- Ted Keenaghan
