Resources

ARC provides patients and healthcare professionals with the latest, up-to-date resources to
help improve treatment and care of patients with amyloidosis.

 

Publications
Expert Consensus Recommendations to Improve Diagnosis of ATTR Amyloidosis with Polyneuropathy
ARC-supported consensus best practice recommendations for the diagnosis of ATTR amyloidosis with polyneuropathy published in the Journal of Neurology, Circulation: Heart Failure.
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Publications
Patients
Webinars
ARC Talks: Genetic Testing for Transthyretin Amyloidosis
Genetic counselors Emily Brown and Katelyn Swade give an overview of the science of genetic testing and the importance of genetic counseling for ATTR patients. Sign in below to watch.
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Patients
Publications
Amyloidosis Research Consortium Cardiac Amyloidosis Survey: An International Analysis of the Diagnostic Journey in AL and ATTR Amyloidosis
"Amyloidosis Research Consortium Cardiac Amyloidosis Survey: An International Analysis of the Diagnostic Journey in AL and ATTR Amyloidosis," was presented at the 23rd annual Heart Failure Society of America meeting from September 13-16, 2019 in Philadelphia, PA. This poster presents results from 745 patients and caregivers and highlights regional differences, changes over time, and how we can improve the diagnostic journey of amyloidosis patients.
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Publications
Publications
Expert Consensus Recommendations for the Suspicion and Diagnosis of Cardiac Transthyretin Amyloidosis
ARC-supported consensus best practices guidelines for the diagnosis of cardiac ATTR amyloidosis published in the journal of the American Heart Association, Circulation: Heart Failure.
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Publications
Publications
(99m) Technetium-Pyrophosphate Imaging for Transthyretin Cardiac Amyloidosis
These practice points from the American Society of Nuclear Cardiology (ASNC) are to identify the critical components involved in performing (99m) Tc-PYP imaging for the evaluation of cardiac transthyretin amyloidosis (ATTR).
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Publications
CME
Webinars
Contemporary Diagnosis and Risk Assessment in Transthyretin Cardiomyopathy​
Presented in February 2019 by: Sharmila Dorbala, MD, MPH, FASNC; Ronald M. Witteles, MD; Mazen Hanna, MD; and Martha Grogan, MD,
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CME
CME
Webinars
State of the Art Imaging in Cardiac Amyloidosis
Presented in March 2019 by: Sharmila Dorbala, MD, MPH, FASNC; Jamieson Bourque, MD; Frederick Ruberg, MD; and Wael Jaber, MD.
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CME
CME
Webinars
Cardiac Amyloidosis Treatments Today, Emerging Treatments for Tomorrow
Presented in May 2019 by: Sharmila Dorbala, MD, MPH, FASNC; Prem Soman, MD, MASNC; Rodney Falk, MD; and Mathew Maurer, MD.
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CME

AMYLOIDOSIS RESEARCH CONSORTIUM, INC.
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