Resources
ARC provides patients and healthcare professionals with the latest, up-to-date resources to
help improve treatment and care of patients with amyloidosis.
AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Caring for the Caregiver
In honor of National Family Caregivers Month, ARC hosted a discussion between Debra Ruehlman, amyloidosis family caregiver, and Ann Payne, MSW, ARC Clinical Care and Education Manager. This webinar explored topics such as self care, self advocacy, and community resources.
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AL Amyloidosis
AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Medicare and the Evolving Financial Landscape
This ARC TALKS Webinar covered information on Medicare basics, choosing a Part D plan, and coverage gaps. ARC was joined by Sylvia Gary from the Centers for Medicare and Medicaid Services (CMS).
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AL Amyloidosis
AL Amyloidosis
Webinars
Webinars
Clinical Trial Updates for the AL Community
In this ARC TALKS webinar, ARC's own Kristen Hsu presented the most current updates for the clinical trial landscape, with a focus on AL amyloidosis. Kristen also discussed the direction future research.
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AL Amyloidosis
Library
Hereditary ATTR Amyloidosis
Patients
Hereditary ATTR Amyloidosis
Patients
Understanding Genetics in Hereditary ATTR Amyloidosis
There are over 120 different mutations that have been identified in the TTR gene and as research continues, it is possible that more may be discovered. Each mutation causes a different pattern of disease onset, symptoms and outlook.
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Library
AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
GI Disturbances and Symptom Management
In this ARC TALKS webinar Dr. Sara Horst discussed how amyloidosis can impact the gastrointestinal tract, GI symptoms, and symptom management.
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AL Amyloidosis
AL Amyloidosis
Library
Patients
Library
Patients
Introducción a la Enfermedad: Amiloidosis de Cadenas Ligeras (Amiloidosis AL)
Un diagnóstico de amiloidosis de cadenas ligeras (amiloidosis AL) puede ser confuso y estresante, lo que da lugar a muchas preguntas y sentimientos. Es fundamental que aprenda todo lo que pueda sobre la enfermedad, su tratamiento y cómo le podría afectar.
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AL Amyloidosis
AL Amyloidosis
Library
Patients
Library
Patients
Introducción al Tratamiento: Amiloidosis de Cadenas Ligeras (Amiloidosis AL)
La amiloidosis AL es una enfermedad grave que puede ser progresiva y mortal si no se trata. Sin embargo, muchos pacientes se benefician de los tratamientos actuales, lo que mejora y prolonga su vida, a menudo durante varios años.
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AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Clinical Trial Updates for the ATTR Community
In this ARC TALKS webinar, ARC's own Kristen Hsu presented the most current updates for the clinical trial landscape, with a focus on ATTR amyloidosis.
Read More
Webinars