Resources
ARC provides patients and healthcare professionals with the latest, up-to-date resources to
help improve treatment and care of patients with amyloidosis.

AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Other Types of Amyloidosis
Patients
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Other Types of Amyloidosis
Patients
Caregivers: A Guide to Self-Care
Nancy Verel, a nurse at the Cleveland Clinic, shares her story about her family's journey through her husband's AL amyloidosis diagnosis and treatment. Robert David from BMC Cancer Support Programs provides coping and support strategies for caregivers.
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AL Amyloidosis

AL Amyloidosis
Patient Stories
Patient Stories
AL Amyloidosis: Dan’s story
Dan, a patient with AL amyloidosis, describes his journey to diagnosis. A once very active athlete, Dan found himself not able to do his favorite activities anymore. After 10-15 doctors misdiagnosed Dan with GERD, emphysema, and athlete's heart, he finally received the correct diagnosis of AL amyloidosis and started on the road to recovery.
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AL Amyloidosis

Patient Stories
Wild-Type Amyloidosis
Wild-Type Amyloidosis
Wild-type ATTR: James’ story
James' only concerning symptom leading up to his diagnosis was bilateral edema. But, after a stroke, James spent a month in the hospital and received a surprising diagnosis of Wild-Type Transthyretin Amyloidosis. James shares his story and optimism just months after his diagnosis.
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Patient Stories

Hereditary ATTR Amyloidosis
Patient Stories
Patient Stories
Hereditary ATTR: Cece’s story
Despite having many of the "red flag" symptoms of amyloidosis, Cece still experienced a delay in diagnosis. Cece shares her story, how a genetic condition has impacted her family, and how a heart transplant changed her life.
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Hereditary ATTR Amyloidosis

AL Amyloidosis
Patient Stories
Patient Stories
AL Amyloidosis: Greg’s story
Greg Foster, 4-time world champion and Olympic Silver medalist, discusses his journey to diagnosis. Learn more about his initial symptoms, multiple doctors visits, and what drove him to continue pursuing an accurate diagnosis of AL Amyloidosis, despite being told he had Athlete's Heart.
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AL Amyloidosis

AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Other Types of Amyloidosis
Patients
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Other Types of Amyloidosis
Patients
Physical and Occupational Therapy – Managing Your Amyloidosis
In this patient webinar, Mayo Clinic's occupational therapist Sarah Dahlhauser, OTD, OTR/L, and physical therapist Sarah Boyd, PT, DPT, discuss exercise principles for maintaining mobility and function, and home modifications for improved safety for amyloidosis patients.
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AL Amyloidosis
Publications
Physicians
Physicians
ARC’s European Health Technology Assessments (HTA) Toolkit
ARC's comprehensive European Health Technology Assessments (HTA) Toolkit was produced to give information about how treatments are evaluated and approved for use in the various member state healthcare systems. The Toolkit guides patients and patient groups on how they can participate in the process to ensure that those treatments that are developed for their amyloidosis can be made available in their countries.
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Publications

AL Amyloidosis
Webinars
ARC Talks
Patients
Webinars
ARC Talks
Patients
Contemporary Management of AL Amyloidosis
In this patient webinar, Dr. Heather Landau, a leading hematologist at Memorial Sloan Kettering Cancer Center, discusses current therapies, clinical trials, and symptom management strategies for patients with AL amyloidosis.
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AL Amyloidosis