Resources
ARC provides patients and healthcare professionals with the latest, up-to-date resources to
help improve treatment and care of patients with amyloidosis.
Publications
ARC’s European Health Technology Assessments (HTA) Toolkit
ARC's comprehensive European Health Technology Assessments (HTA) Toolkit was produced to give information about how treatments are evaluated and approved for use in the various member state healthcare systems. The Toolkit guides patients and patient groups on how they can participate in the process to ensure that those treatments that are developed for their amyloidosis can be made available in their countries.
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Publications

ARC Talks
Patients
Webinars
Patients
Webinars
Contemporary Management of AL Amyloidosis
In this patient webinar, Dr. Heather Landau, a leading hematologist at Memorial Sloan Kettering Cancer Center, discusses current therapies, clinical trials, and symptom management strategies for patients with AL amyloidosis.
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ARC Talks
Publications
Expert Consensus Recommendations to Improve Diagnosis of ATTR Amyloidosis with Polyneuropathy
ARC-supported consensus best practice recommendations for the diagnosis of ATTR amyloidosis with polyneuropathy published in the Journal of Neurology, Circulation: Heart Failure.
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Publications

ARC Talks
Patients
Webinars
Patients
Webinars
Genetic Testing for Hereditary TTR Amyloidosis
Genetic counselors Emily Brown and Katelyn Swade provide an overview of the science of genetic testing. They also discuss importance of genetic counseling for hereditary ATTR patients and their families.
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ARC Talks
Publications
Amyloidosis Research Consortium Cardiac Amyloidosis Survey: An International Analysis of the Diagnostic Journey in AL and ATTR Amyloidosis
"Amyloidosis Research Consortium Cardiac Amyloidosis Survey: An International Analysis of the Diagnostic Journey in AL and ATTR Amyloidosis," was presented at the 23rd annual Heart Failure Society of America meeting from September 13-16, 2019 in Philadelphia, PA. This poster presents results from 745 patients and caregivers and highlights regional differences, changes over time, and how we can improve the diagnostic journey of amyloidosis patients.
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Publications
Publications
Expert Consensus Recommendations for the Suspicion and Diagnosis of Cardiac Transthyretin Amyloidosis
ARC-supported consensus best practices guidelines for the diagnosis of cardiac ATTR amyloidosis published in the journal of the American Heart Association, Circulation: Heart Failure.
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Publications
Publications
(99m) Technetium-Pyrophosphate Imaging for Transthyretin Cardiac Amyloidosis
These practice points from the American Society of Nuclear Cardiology (ASNC) are to identify the critical components involved in performing (99m) Tc-PYP imaging for the evaluation of cardiac transthyretin amyloidosis (ATTR).
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Publications
CME
Webinars
Webinars
Contemporary Diagnosis and Risk Assessment in Transthyretin Cardiomyopathy
Presented in February 2019 by: Sharmila Dorbala, MD, MPH, FASNC; Ronald M. Witteles, MD; Mazen Hanna, MD; and Martha Grogan, MD,
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CME