News
October 31, 2024
ARC Launches Clinical Fellowship Program to Advance Amyloidosis Care
BOSTON, Mass., Oct. 31, 2024 /PRNewswire/ -- The Amyloidosis Research Consortium (ARC) is proud to announce the launch of its Clinical Fellowship Program, designed to enhance the education and development of the next generation of amyloidosis specialists. This initiative aims...
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March 26, 2024
The More Things Change, the More They Stay the Same
David Gibson,1 Kristen Hsu,1 James Signorovitch,2 and Isabelle Lousada1 1Amyloidosis Research Consortium, Newton, MA, USA; 2The Analysis Group Inc., Boston, MA, USA Amyloid transthyretin (ATTR) amyloidosis is a progressive, debilitating, and ultimately fatal disease caused by deposition of misfolded...
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The Inflation Reduction Act: The Devil is in the Details for Patients with Rare Diseases
David Gibson, PhD, CMPP Director of Strategic Programs, Engagement, and Communications Amyloidosis Research Consortium The Inflation Reduction Act (IRA), signed into law on August 16, 2022, tackled a wide range of issues from tax reform, energy security, environmental and...
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December 22, 2023
FDA Approves WAINUA™ (Eplontersen) for Treatment of Hereditary ATTR Amyloidosis Polyneuropathy
BREAKING NEWS: The U.S. Food and Drug Administration has approved AstraZeneca and Ionis’ WAINUA™ (eplontersen) for the treatment of the polyneuropathy of hereditary transthyretin-mediated amyloidosis in adults, commonly referred to as hATTR-PN or ATTRv-PN. WAINUA™ (eplontersen) is a Ligand-Conjugated Antisense...
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November 13, 2023
Forging the Path to a Cure
We continue to innovate and improve research and programs to ensure all patients have access to quality care and effective treatment. Your donation will help forge the path to a cure for amyloidosis.
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