Amyloidosis Stakeholder Partnerships for
Impact, Reach and Equity
About ASPIRE
ASPIRE’s mission is to collectively power inclusive and accessible solutions in partnership with the broader amyloidosis community to improve quality of life and health outcomes.
Established in 2021, the ASPIRE: Amyloidosis Industry Collaborative convenes leading companies in a pre-competitive space to address some of the most urgent issues faced by the amyloidosis community. Through partnership we are driven to shift the discourse and demonstrate what can be done when leaders work together on behalf of rare disease patients.
ASPIRE aims to accelerate progress in the areas of diagnosis, care, and address health disparities through collaborative project design and shared resources, arriving at solutions that address common challenges and unmet need.
Priority Initiatives
Coordinated Care Working Group
Diagnostic Pathways Working Group
Health Equity Working Group
Executive Steering Committee Members
Executive Steering Committee representatives are nominated and elected to serve in governance positions.
Kaushik Ghosal
Chair
Director of Business Development and Strategic Partnerships, ARC
Nisith Kumar
Co-Chair
Global Patient Advocacy Lead, Pfizer
Jocelyn Ashford
Health Equity Working Group
Head of U.S. Corporate Affairs, Cardiovascular, Renal & Metabolic Therapies, AstraZeneca
Alexandra Haddad Angulo
Coordinated Care Working Group
Senior Medical Director US Rare Cardiology, Pfizer
Colleen Moffitt
Coordinated Care Working Group
Medical Director, Alnylam
Spencer Guthrie
Diagnostic Pathways Working Group
COO, Attralus
Veena Narayan
Diagnostic Pathways Working Group
Director, Medical Affairs, Neuroscience
JeShaune Jackson
Health Equity Working Group
Director, Strategic Alliances & Patient Advocacy, BridgeBio
Impact
Value of Artificial Intelligence for Enhancing Suspicion of Cardiac Amyloidosis Using Electrocardiography and Echocardiography: A Narrative Review
View the publication →
The Health Equity Working Group completed a study to better understand the experiences of Black amyloidosis patients who live or work in the Greater Cincinnati Area. The group is currently developing a manuscript to share key findings.
ASPIRE: Industry Collaborative, Member Companies
Contact
To learn more please contact Megan Glynn, Senior Program Manager for ASPIRE, at mglynn@arci.org.
