The PAC Putting Patients First
ARC has created a new Patient Advisory Committee to impact the future of amyloidosis treatment and care. As a patient led organization, our team at ARC recognizes the value and importance of engaging and understanding the experiences of patients and...
Taming Wild-Type Amyloidosis — FAQ
Leading cardiologist Dr. Martha Grogan was our guest speaker for Taming Wild-Type, our recent ARC Talks webinar focused on wild-type transthyretin amyloidosis (ATTRwt). In the presentation, Dr. Grogan, the Founder and Director of the Cardiac Amyloid Clinic at the Mayo...
A Journey of Introspection and Waiting: Part 2
Stephanie Ayars’ family was forever changed after her dad received the news that he had hereditary amyloidosis. In our first post of a two-part series, Stephanie shared her dad’s story from diagnosis to organ transplants, and what led her to...
A Journey of Introspection and Waiting: Part 1
Stephanie Ayars’ life and her father’s were forever changed by hereditary amyloidosis. Here, in the first of a two-part post, she shares their stories: I’d like you to meet my dad, Paul. I’m sharing some photos taken over the decades,...
Remembering Dr. Merrill Benson
The Amyloidosis Research Consortium extends our deepest, heartfelt condolences to the family and friends of Dr. Merrill Benson, world renowned amyloidosis expert, who passed away on September 11, 2021. He was 83.