A Journey of Introspection and Waiting: Part 2
Stephanie Ayars’ family was forever changed after her dad received the news that he had hereditary amyloidosis. In our first post of a two-part series, Stephanie shared her dad’s story from diagnosis to organ transplants, and what led her to...
A Journey of Introspection and Waiting: Part 1
Stephanie Ayars’ life and her father’s were forever changed by hereditary amyloidosis. Here, in the first of a two-part post, she shares their stories: I’d like you to meet my dad, Paul. I’m sharing some photos taken over the decades,...
Remembering Dr. Merrill Benson
The Amyloidosis Research Consortium extends our deepest, heartfelt condolences to the family and friends of Dr. Merrill Benson, world renowned amyloidosis expert, who passed away on September 11, 2021. He was 83.
Managing GI Issues in Amyloidosis – FAQ
Dr. John Clarke from Stanford University presented in a recent ARC Talks webinar on Gastro Intestinal Disturbances and Symptom Relief for Amyloidosis. This report covers the most frequently asked questions and recommendations. (more…)
Announcing our Educational Booklet Series!
Quality and reliable information has always been a focus of the Amyloidosis Research Consortium (ARC). When patients are first diagnosed, it’s hard to know where to turn to learn about your options and what may lie ahead. (more…)