Webinars

AL Amyloidosis Clinical Trials (April 2026)

The Amyloidosis Research Consortium's Executive Director of Research, Kristen Hsu, discussed the current clinical trial landscape in AL amyloidosis. She reviewed trials currently recruiting patients, trials expecting to share results this year, and trials that are planned to open in the future.

AL Amyloidosis

When the Gut Speaks (Centering Symptoms in Amyloid Care)

Dr. Melissa Hershman joined ARC to discuss how amyloidosis may be affecting your gut, and what you can do about it. There was also an opportunity for questions and answers.

AL Amyloidosis

The Role of Imaging in Amyloidosis Diagnosis & Management

A heart specialist and leader of OHSU’s Cardiac Amyloidosis and Hypertrophic Cardiomyopathy programs, Dr. Masri discussed how imaging plays a key role in identifying amyloidosis and monitoring treatment.

AL Amyloidosis

ATTR Amyloidosis Clinical Trials (January 2026)

Kristen Hsu, ARC’s Executive Director of Research, shared the latest updates on ATTR (transthyretin amyloidosis) clinical trials and what these developments mean for patients and families. There was also an opportunity for questions and answers.

Webinars

Coffee Chat with ARC 2025

This webinar “Coffee Chat” style webinar is your chance to learn about the different programs and projects ARC has been working on in 2025! Hear directly from ARC staff how we are supporting patients and helping shape the future of amyloidosis.

AL Amyloidosis

Tips for Surviving & Thriving as a Care Partner

Clinical Psychologist Rosalind Kalb, PhD shared helpful advice, self-care tips, and real-life strategies to make daily life a little easier for both Care Partners and loved ones. Linnie, an amyloidosis Care Partner, also shared experiences and perspectives from her own life.

AL Amyloidosis

Neuropathy and Amyloidosis

Dr. Sami Khella, Professor of Neurology and co-founder of the Amyloidosis Program at the University of Pennsylvania discussed the latest in diagnosis, treatment, and management of neuropathy and amyloidosis.

Webinars

ATTR Cardiac Treatments

Dr. Jan Griffin, amyloidosis cardiologist at the Medical University of South Carolina, discussed how ATTR affects the heart and explored advances in treatments for ATTR-CM.

Webinars

Understanding Living with Amyloidosis: Insights from the ARC Annual Community Survey

Sabrina Rebello, ARC's Senior Research Manager, presented an in-depth overview of key insights from our Annual Community Survey. This webinar focused on understanding the experiences of patients and caregivers throughout their diagnostic journey and ongoing care.

AL Amyloidosis

Emotional Aspects of Amyloidosis

Dr. Meghan Beier, psychologist at the Rowan Center for Behavioral Medicine, explored the emotional aspects of amyloidosis. She discussed mental health issues in amyloidosis and present strategies for coping.

AL Amyloidosis

Amyloidosis 101

Dr. Sarah Cuddy, cardiologist at Brigham and Women's Hospital, explored the basics of amyloidosis. She presented an introduction to amyloidosis, the different types, and the available treatments. The webinar concluded with a Q&A session.

AL Amyloidosis

Caring for the Caregiver

In honor of National Family Caregivers Month, ARC hosted a discussion between Debra Ruehlman, amyloidosis family caregiver, and Ann Payne, MSW, ARC Clinical Care and Education Manager. This webinar explored topics such as self care, self advocacy, and community resources.

AL Amyloidosis

GI Disturbances and Symptom Management

Dr. Sara Horst discussed how amyloidosis can impact the gastrointestinal tract, GI symptoms, and symptom management.

AL Amyloidosis

Physical Therapy for Amyloidosis Management

Physical therapists Kelsi Schiltz, and Katie Johnson provided recommendations for managing neuropathy symptoms.

AL Amyloidosis

Visualizing Amyloidosis: The Role of Imaging

Dr. Sharmila Dorbala explained the role that medical imaging techniques play in both diagnosing and managing amyloidosis.

AL Amyloidosis

Devices for Heart Improvement

Amyloidosis cardiologist, Dr. Mazen Hanna discusses the function of implantable, electronic devices in cardiac management of amyloidosis patients.

AL Amyloidosis

Navigating Care Choices at the End of Life

Jill Waldron, NP and Rebecca Kirch provide guidance on navigating care choice options for amyloidosis patients and caregivers during health decline.

AL Amyloidosis

Kidney Disease Presentation in Amyloidosis

Dr. Nelson Leung focused on renal involvement in AL, AA, ALECT2 and ATTR amyloidosis, while discussing treatment and response assessments for each type.

Webinars

Cardiac and Neurological Approaches in ATTR Management

Dr. Nativi-Nicolau and Dr. Elizabeth Mauricio discussed the decision pathway in management of ATTR amyloidosis from the cardiac and neurological standpoint.

Webinars

Approaches to Treating Relapsed and Refractory AL Amyloidosis

Dr. Heather Landau discussed current treatment options for relapsed and refractory AL amyloidosis patients. Dr. Landau also talked about the current testing methodology used to monitor a patient’s disease status, and the role maintenance therapy may play in the management of relapsed AL amyloidosis.

AL Amyloidosis

The Fundamentals of Clinical Trials and Current Advances in Amyloidosis Research

Dr. Morie Gertz gave a 101 overview of clinical trials, including consideration in how they are designed, and the phases needed for drug development. Dr. Gertz also discussed current clinical trials that are evaluating the next generation of drugs for the treatment of AL and ATTR amyloidosis.

Webinars

Hereditary ATTR Amyloidosis: The Role of Genetic Testing and Recommendations for Genetic Carriers

Cardiologist Dr. Ahmad Masri MD, MS and genetic counselor Emily Brown, MGC, CGC discuss the role of genetic testing in hereditary ATTR amyloidosis care, along with providing disease management recommendations for genetic carriers.

Webinars

The Role of Stem Cell Transplants in AL Amyloidosis Treatment

Sandy Wong, MD, and Nancy Wong, NP, discuss autologous stem cell transplantation as a therapy choice for AL amyloidosis patients. Dr. Wong outlines each phase of the process and goes over the function of stem cell transplants in the context of medical care. Nancy Wong discusses how to prepare for a stem cell transplant while highlighting key care considerations for each phase of therapy. Her concluding remarks focus on important considerations during the recovery period.

AL Amyloidosis

Amyloidosis and Nutrition: Eating for Your Health

Briana Pineau, MS, RD, LDN, a registered dietician at Boston Medical Center, discusses the role nutrition can play in the management of amyloidosis symptoms. In addition to covering gastrointestinal involvement associated with various types of amyloidosis, Briana covers the broader health benefits of a balanced diet.

AL Amyloidosis

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