Category: Research

FDA Amyloidosis Forum
Report from the Amyloidosis Forum’s Initial Meeting at FDA
The inaugural Amyloidosis Forum took place on November 12th, 2019 at FDA’s White Oak Campus in Silver Spring, MD. We could not have hoped for a better turnout, a more spirited and productive discussion. (more…)
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ARC Developing a Disease-Specific PRO Tool for Patients with ATTR Amyloidosis
ARC is developing a patient-reported outcome (PRO) measurement tool in ATTR amyloidosis to be used to understand and measure the impact of the disease on patients from the patient’s perspective. (more…)
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ARC sponsored Satellite Symposium at HFSA
For the third year running, ARC is supporting a CME Satellite Symposium at the Heart Failure Society of America (HFSA) conference. "Avoiding the pitfalls of diagnosing and treating cardiac ATTR amyloidosis" will be held on Sunday evening, September 15, at...
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Research opportunity from hom
Opportunity to Advance hATTR Amyloidosis Research from Home
Prothena has teamed up with Sanguine, a provider of at-home clinical research services, to give you the opportunity to help advance hATTR Amyloidosis research from home. (more…)
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Advancing Amyloidosis: Roadmap for Research
FOR IMMEDIATE RELEASE LEADING EXPERTS PUBLISH A ROADMAP FOR CRITICAL AREAS OF RESEARCH IN AMYLOIDOSIS (more…)
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AMYLOIDOSIS RESEARCH CONSORTIUM, INC.
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