Category: Patient Support
Taming Wild-Type Amyloidosis — FAQ
Leading cardiologist Dr. Martha Grogan was our guest speaker for Taming Wild-Type, our recent ARC Talks webinar focused on wild-type transthyretin amyloidosis (ATTRwt). In the presentation, Dr. Grogan, the Founder and Director of the Cardiac Amyloid Clinic at the Mayo...
A Journey of Introspection and Waiting: Part 2
Stephanie Ayars’ family was forever changed after her dad received the news that he had hereditary amyloidosis. In our first post of a two-part series, Stephanie shared her dad’s story from diagnosis to organ transplants, and what led her to...
A Journey of Introspection and Waiting: Part 1
Stephanie Ayars’ life and her father’s were forever changed by hereditary amyloidosis. Here, in the first of a two-part post, she shares their stories: I’d like you to meet my dad, Paul. I’m sharing some photos taken over the decades,...
From weeks to live to pioneering the Amyloidosis landscape
ARC's CEO, Isabelle Lousada, was told she had just weeks to live when she was diagnosed with AL Amyloidosis 25 years ago. A dedicated team of physicians at Boston Medical Center performed an experimental stem cell transplant, making Isabelle only...
Managing GI Issues in Amyloidosis – FAQ
Dr. John Clarke from Stanford University presented in a recent ARC Talks webinar on Gastro Intestinal Disturbances and Symptom Relief for Amyloidosis. This report covers the most frequently asked questions and recommendations. (more…)