Healthcare Professional Support
The Amyloidosis Research Consortium (ARC) is committed to working with healthcare professionals to ensure patients receive the best treatment and care.
The following materials are designed to ensure healthcare professionals are fully equipped to best care for those living with amyloidosis. We provide unique resources for clinics and tailored information for doctors, nurses, and other clinicians.
We collaborate with amyloidosis experts from around the world to design educational tools that provide clinicians with easy access to the most current information on scientific and clinical advances to help achieve earlier diagnosis and therapeutic intervention.
Amyloidosis Center Toolkit
Recommendations to help launch a new program or strengthen an existing one.
Building an amyloidosis program takes more than clinical expertise. It takes coordination across specialties, reliable diagnostics, institutional buy-in, and strong connections to the broader amyloidosis community.
ARC has put together a practical guide for clinicians and program leaders who want to start or expand an amyloidosis center. It walks through the core building blocks, from identifying internal partners to engaging hospital leadership. Each section points to resources that can support your work.
Amyloidosis Project ECHO
Learn about amyloidosis care from the best clinicians in the field.
Project ECHO (Extension for Community Healthcare Outcomes), developed at the University of New Mexico, is a collaborative learning model for medical offering quarterly 1-hour sessions focused on AL (light chain) and TTR (transthyretin) amyloidosis, two underrecognized but increasingly manageable causes of heart failure and multisystem disease.
Each session includes:
- Brief didactic lectures (20 minutes) on suspicion, diagnosis, and management
- Case-based learning from real-world scenarios (20 min)
- Interactive Q&A (20 min) with amyloidosis specialists
Educational Webinars
Hear from prominent experts as they review and highlight key details about amyloidosis care.
Genetics and Amyloidosis
Amyloidosis CME Module
Carpal Tunnel and Amyloidosis
Quarterly Newsletter
ARC’s quarterly HCP newsletter keeps you connected to all of our newest project updates, educational material, and programs supporting you, your patients, and your clinic. Stay up to date on the latest from the Amyloidosis Research Consortium, tailored especially for healthcare professionals.
Patient Educational Booklets
Equip your patients with educational booklets covering their type of amyloidosis, treatment information, and the impact of various symptoms and proceedures.
Understanding amyloidosis is critical to patient care and overall health. These complimentary educational booklets from ARC help patients get a foothold on their health, understand the options in front of them, and take control of their next steps. Request the copies you need for your patients delivered to your clinic.
My Amyloidosis Pathfinder (MAP)
Help patients discover clinical trials that fit their disease and connect more patients to your clinic and care.
MAP is a free, easy-to-use tool that enables patients to find and compare specialty treatment centers and receive personalized matches to amyloidosis clinical trials. Make sure your clinic is listed by contacting ARC at support@arci.org.
Other Helpful Resources
More materials and webpages you and your patients will find useful as you care for them and they navigate treatment.
Clinical Fellowship Award Program
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ARC Community Research
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Patient Support Resources
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ASPIRE Industry Collaborative
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ARC Publications
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Amyloidosis Blog
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