Resources

Dr. John Clarke, a gastroenterologist and motility specialist with Stanford Medicine, covers everything that patients need to know about GI involvement and symptom management in amyloidosis, followed by a Q&A session.

This physician webinar covers the treatment of amyloidosis patients during the COVID-19 pandemic. With guidelines from the International Society of Amyloidosis, high-risk patient considerations, an update on clinical trials, and policy changes, we cover everything HCPs need to know.

Nancy Verel, a nurse at the Cleveland Clinic, shares her story about her family's journey through her husband's AL amyloidosis diagnosis and treatment. Robert David from BMC Cancer Support Programs provides coping and support strategies for caregivers.

Dan, a patient with AL amyloidosis, describes his journey to diagnosis. A once very active athlete, Dan found himself not able to do his favorite activities anymore. After 10-15 doctors misdiagnosed Dan with GERD, emphysema, and athlete's heart, he finally received the correct diagnosis of AL amyloidosis and started on the road to recovery.

James' only concerning symptom leading up to his diagnosis was bilateral edema. But, after a stroke, James spent a month in the hospital and received a surprising diagnosis of Wild-Type Transthyretin Amyloidosis. James shares his story and optimism just months after his diagnosis.

Despite having many of the "red flag" symptoms of amyloidosis, Cece still experienced a delay in diagnosis. Cece shares her story, how a genetic condition has impacted her family, and how a heart transplant changed her life.  

Greg Foster, 4-time world champion and Olympic Silver medalist, discusses his journey to diagnosis. Learn more about his initial symptoms, multiple doctors visits, and what drove him to continue pursuing an accurate diagnosis of AL Amyloidosis, despite being told he had Athlete's Heart.

In this patient webinar, Mayo Clinic's occupational therapist Sarah Dahlhauser, OTD, OTR/L, and physical therapist Sarah Boyd, PT, DPT, discuss exercise principles for maintaining mobility and function, and home modifications for improved safety for amyloidosis patients.