Resources
ARC provides patients and healthcare professionals with the latest, up-to-date resources to
help improve treatment and care of patients with amyloidosis.

Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Current ATTR landscape: Treatments and Trials
Amyloidosis expert Dr. John L. Berk presents the most current treatment options for ATTR amyloidosis. Dr. Berk also discusses clinical trials and future research. The webinar concludes with a Q and A session.
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Webinars

AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Other Types of Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Other Types of Amyloidosis
Amyloidosis and Nutrition: Eating for Your Health
Briana Pineau, MS, RD, LDN, a registered dietician at Boston Medical Center, discusses the role nutrition can play in the management of amyloidosis symptoms. In addition to covering gastrointestinal involvement associated with various types of amyloidosis, Briana covers the broader health benefits of a balanced diet.
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AL Amyloidosis
Publications
Evaluation of NT-proBNPas surrogate endpoint in AL amyloidosis: development of a platform for federated, multi-institution meta-analysis of randomized trials
Angela Dispenzieri, James Signorovtich, Mathew S. Maurer, Xianghua Huang, Vaishali Sanchorawala, Preston Dunnmon, Catherine Klersy, Giulia Gambini, David Brown, Yolanda Barbachano, Rosalyn Adigun, Kristen Hsu, Isabelle Lousada, Liang Xiu, Douglas V. Faller, Richard Labotka, Giampaolo Merlini, Giovanni Palladini. XVIII Meeting of the International Society of Amyloidosis, 2022
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Publications

AL Amyloidosis
Library
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Patients
Library
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Patients
Gastrointestinal Involvement in Amyloidosis
Many types of amyloidosis can affect patients’ gastrointestinal (GI) tract, causing painful, annoying, or even debilitating symptoms. It is common for patients with amyloidosis to experience GI involvement and in fact, some patients may have GI-related symptoms as their most predominant sign or chief complaint.
Read More
AL Amyloidosis

AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Other Types of Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Other Types of Amyloidosis
The Heart of the Matter: Cardiac Amyloidosis
Dr. Kevin Alexander, a cardiac amyloidosis specialist from Stanford University, discusses the cardiac signs and symptoms to recognize, treatment and management options for each type of Amyloidosis and the future direction of research in the field.
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AL Amyloidosis

AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Other Types of Amyloidosis
Patients
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
ARC Talks
Other Types of Amyloidosis
Patients
Empowering Patients: Navigating Your Care
Isabelle Lousada shares her experiences with amyloidosis and the lessons learnt on how to become an empowered and informed patient. Lisa Mendelson, nurse practitioner from Boston University’s Amyloidosis Program provides a valuable medical perspective about how to build a successful relationship with your care team. Original presentation date June 23, 2022.
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AL Amyloidosis

AL Amyloidosis
Library
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Patients
Library
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Patients
Neuropathy in Amyloidosis
Many types of amyloidosis can affect patients’ nerves, causing painful, annoying, or even debilitating symptoms. It is common for patients with amyloidosis to experience neuropathy and in fact, some patients may have nerve-related symptoms as their most predominant sign or chief complaint.
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AL Amyloidosis

AL Amyloidosis
Webinars
ARC Talks
Patients
Webinars
ARC Talks
Patients
AL Amyloidosis: Treatment Approaches
Dr Sasha Tuchman, Director of the Myeloma and Amyloidosis Program at UNC gives an overview of AL amyloidosis, before taking a deep dive into the different types of currently available treatments for different disease stages. He also touches on future directions including clinical trials. The webinar concludes with an audience question and answer session.
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AL Amyloidosis