Resources
ARC provides patients and healthcare professionals with the latest, up-to-date resources to
help improve treatment and care of patients with amyloidosis.
Was the information on this page helpful?
YesNo

AL Amyloidosis
AL Amyloidosis: Treatment Approaches
Dr Sasha Tuchman, Director of the Myeloma and Amyloidosis Program at UNC gives an overview of AL amyloidosis, before taking a deep dive into the different types of currently available treatments for different disease stages. He also touches on future directions including clinical trials. The webinar concludes with an audience question and answer session.
Read More
AL Amyloidosis
Publications
Proposed Cardiac End Points for Clinical Trials in Immunoglobulin Light Chain Amyloidosis: Report From the Amyloidosis Forum Cardiac Working Group
Mathew S Maurer, Preston Dunnmon, Mariana Fontana, Christina Candida Quarta, Krishna Prasad, Ronald M. Witteles, Claudio Rapezzi, James Signorovitch, Isabelle Lousada, Giampaolo Merlini, Circulation: Heart Failure, 121.009038, March 2022
Visit Website
Publications

AL Amyloidosis
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Mental Health Matters: Caring for your Wellbeing
Rare disease mental health expert Kym Winter will equip you with the resources and tools you need to take care of your mental health.
In this interactive session, you will be introduced to the Stress Bucket Approach, which is a simple way of thinking about and looking after your own - and others’ - emotional wellbeing in order to live well with the impacts of a rare disease such as amyloidosis. Original presentation date February 23, 2022
Read More
AL Amyloidosis

AL Amyloidosis
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Coffee with ARC: Learn about ARC’s work
In this ARC Talks special presentation, Coffee with ARC, some members of the ARC team will provide an overview of ARC's history and areas of focus, as well as our plans for 2022 and beyond. Original presentation date December 9, 2021
Read More
AL Amyloidosis

AL Amyloidosis
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Living Well with Amyloidosis
In amyloidosis, common symptoms such as gastrointestinal manifestations and neuropathy are often the most troublesome for patients. In our ARC Talks Webinar for patients and caregivers, amyloidosis experts from across multiple specialties explain approaches for symptom management. Our experts provide you with the knowledge you need to live well with amyloidosis. Original presentation date October 26, 2021
Read More
AL Amyloidosis

Hereditary ATTR Amyloidosis
The Role of Gene Editing in hATTR Amyloidosis
In this ARC Talks Webinar for patients and caregivers, Professor Julian Gillmore, the Head and Research Lead of the National Amyloidosis Centre in London, describes the role of gene editing in hereditary diseases like hATTR, and shares the early results of Intellia’s CRISPR trial. Intellia’s Head of Development for In Vivo programs, Dr. Liron Walsh, joins Professor Gillmore for a question and answer session.
Read More
Hereditary ATTR Amyloidosis

Wild-Type Amyloidosis
Taming Wild-Type
This ARC Talks Webinar covers everything that patients and their families should know about wild-type transthyretin amyloidosis. Dr. Martha Grogan, Founder and Director of the Cardiac Amyloid Clinic at the Mayo Clinic, covers disease progression, prognosis, treatment options, and more. Dr Grogan then answers questions from the audience from our live presentation on June 10, 2021.
Read More
Wild-Type Amyloidosis

Publications
Physicians
Physicians
ARC Compass: A Newsletter for Amyloidosis Research Updates
Compass is a newsletter for amyloidosis research updates with the goal of keeping the amyloidosis community informed of ARC’s research and initiatives. The June 2021 edition focuses on the recently completed Amyloidosis Research Consortium Cardiac Amyloidosis Survey.
Read More
Publications
Was the information on this page helpful?
YesNo