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In this ARC Talks webinar, Kristen Hsu, Executive Director of Research, and Sabrina Rebello, Research Manager, provide an overview of ARC’s research programs, share findings from our 2022 community survey results, and highlight the future direction of ARC’s research.

Original Presentation Date:
January 26, 2023

 

Key Webinar Highlights:

0:00 – Welcome and Introduction

4:45 – ARC’s Approach to Research

7:00 – ARC’s Public-private Partnership with the FDA: The Amyloidosis Forum

10:42 – ARC’s Patient Reported Outcome Measure

13:43 – ARC’s Community Research Program

16:36 – 2022 Community Survey Results

26:20 – Growth in Community Survey Results

27:40 – ARC’s Future Direction of Research

30:07 – How to Stay Involved

32:55 – Q and A Section

52:47 – Thank you and Close
 
 
 
 

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