Privacy

This site uses cookies. By using this site, you agree that the Consortium may place cookies on your device and access them when you visit our site. A cookie is a small file of letters and numbers that we put on your computer. The cookies we use aid us in improving our site and your experience by tracking which areas and features of our site are popular, making the site easier to navigate, count visits, and allow a registered user to remain signed in to his/her user profile throughout a visit. We may also use cookies placed on our site by third parties acting on our behalf. If you want to opt out of our cookies, you can delete them and any other cookies that are already on your computer. Please refer to the help and support areas on your Internet browser for instructions on how to locate the file or directory that stores cookies. Some functionalities on our site may be affected if you delete our cookies.

The Consortium collects the following information through our secure online financial-transaction pages: name, address, e-mail address, phone number, and credit card information. This personally identifiable information is used to acknowledge receipt of your donation for tax purposes and to include you on the Consortium’s mailing list if you choose to join it.

We care about the security of your transactions and apply industry-standard practices and technologies to safeguard your credit card information. We use high-grade encryption and the secure https protocol to communicate with your browser software, which guards against interception of the credit card information you give us. We also employ several different security techniques to protect your personally identifiable information from unauthorized access by users inside and outside the organization. The web servers for the Consortium are located in a locked, secure environment, and computer systems are maintained in accordance with industry standards to secure information. You should be aware, however, that “perfect security” does not exist on the Internet, and third parties may unlawfully intercept or access transmissions or private communications.

The Consortium provides a separate online form to join our mailing list. The information we collect includes: name, address, e-mail address, and phone number. This information is securely stored internally and accessed only when we correspond with our mailing list periodically during the year, either via e-mail or regular mail.

Please contact us directly by regular mail, email or telephone if at any time you wish to be removed from the mailing list or if you would like to correct or change the personal information you have previously provided.

You will be added to the Amyloidosis Research Consortium’s email newsletter list only if you register to receive newsletters via a form or checkbox on the Amyloidosis Research Consortium website. You may opt out of receiving our eNewsletters by clicking on the opt-out link included in every email newsletter we send.

The Consortium’s site includes links, some temporary and some permanent, to other websites. We are not responsible for the privacy and security practices of any other website or the nature of the content contained therein.

None of the content and information on the Consortium’s website is targeted toward children under 13 years of age. We make every effort possible to ensure that we do not collect or maintain information on our website from those we know to be younger than 16 unless parental consent has been obtained in writing.

In the event that the Consortium decides to alter its privacy policy, the changes will be added directly to this statement. We will, however, always use information in accordance with the version of the privacy policy under which it was originally collected.

If you have specific questions or concerns about the Consortium’s privacy policy, please contact us at the following address:

The Amyloidosis Research Consortium
320 Nevada Street, Suite 210

Newton, MA 02460

617-467-5170