Events

ARC's Senior Research Manager, Sabrina Rebello, for an in-depth overview of key insights from our Annual Community Survey. This webinar will focus on understanding the experiences of patients and caregivers throughout their diagnostic journey and ongoing care. We'll explore common challenges faced by those impacted by amyloidosis, highlight the areas where improvements can be made, and discuss patient preferences and perceptions in their treatment and care management. Whether you’re a healthcare professional, researcher, or advocate, this session will provide valuable perspectives to better understand how the journey to diagnosis and treatment has evolved over time and the continuing needs of the amyloidosis community.    

ARC welcomes Jan Griffin, MD, amyloidosis cardiologist at the Medical University of South Carolina. Dr. Griffin will discuss how ATTR affects the heart and explore the evolution of treatments for ATTR-CM. She will cover what the available drugs are, how they work (and how do we know they are working), and what's next on the horizon. The webinar concludes with a Q and A session.    

ARC's Executive Director of Research Kristen Hsu presents the most current updates for the clinical trial landscape, with a focus on ATTR amyloidosis. Kristen will also discuss the direction of future research. The webinar concludes with a Q and A session.