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A Journey of Introspection and Waiting: Part 2
Stephanie Ayars’ family was forever changed after her dad received the news that he had hereditary amyloidosis. In our first post of a two-part series, Stephanie shared her dad’s story from diagnosis to organ transplants, and what led her to get genetic testing to see if she was a carrier for the disease. In today’s post, the second of a two part post, Stephanie shares her experience getting her genetic testing results—and the events that transpired thereafter. I honestly don’t...
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A Journey of Introspection and Waiting: Part 1
Stephanie Ayars’ life and her father’s were forever changed by hereditary amyloidosis. Here, in the first of a two-part post, she shares their stories: I’d like you to meet my dad, Paul. I’m sharing some photos taken over the decades, all of which I love because they showcase times when my dad was healthy—at least on appearances. Little did we know that amyloidosis was wreaking havoc in his body. But back to Paul so that you can get a quick...
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ISA Virtual Workshop: Gaps In Diagnosis And Management Of AL Amyloidosis
The International Society of Amyloidosis (ISA) is hosting a virtual workshop on November 10, 2021 with physicians from amyloidosis centers around the world. Proper management of patients with AL amyloidosis requires a multidisciplinary team. This workshop will be aimed at all those who participate in the management of patients with AL amyloidosis, particularly hematologists, cardiologists, neurologists, nephrologists, pathologists, laboratory specialists and stem cell transplant physicians. (more…)
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63rd ASH (American Society of Hematology) Annual Meeting & Exposition
The 63rd ASH Annual Meeting & Exposition is the world's most comprehensive hematology event of the year. The meeting will provide an invaluable educational experience, and the opportunity to review thousands of scientific abstracts highlighting updates in a variety of hematology topics. Network with top minds in the field and a global community of more than 25,000 hematology professionals from every sub-specialty.
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ISA Virtual Seminars: Part 2- Diagnosis of Amyloidosis
The International Society of Amyloidosis (ISA) is hosting 3 Virtual CME Seminars to spotlight important topics in the ever-changing field of amyloidosis. The second in the series, Diagnosis of Amyloidosis, will take place on December 2, 2021. (more…)
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