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ARC’s research on Hereditary Transthyretin Amyloidosis (hATTR): Burden of Disease and Treatment Perspectives, was presented at the XII Paulista Congress of Neurology in Brazil. The English version of the poster is translated from Portuguese, and the data can be used by the Brazilian HTA during their evaluation of new treatments for patients with hATTR neuropathy.

Amyloidosis Research Consortium Cardiac Amyloidosis Survey: Results from Patients with AL and ATTR Amyloidosis and their Caregivers, was presented at the XVIth International Symposium on Amyloidosis from March 26-29, 2018 in Kumamoto, Japan. This poster presents results from 699 patients and caregivers and highlights the complex and burdensome diagnostic journey in amyloidosis.

As a patient-led organization, ARC has firsthand knowledge of how amyloidosis affects our community. But our advocates aren’t just patients – they are also family members, caregivers and healthcare professionals who want to join ARC to make sure their voices are heard loud and clear.

As a patient or caregiver you can play an important role by sharing your perspectives and experiences to help us shape research and address the urgent, unmet medical needs of amyloidosis patients. At ARC we are very interested in better understanding the challenges patients face and what matters most to them.