Psychometric Evaluation of the Transthyretin Amyloidosis Quality of Life (ATTR-QOL) Questionnaire
New Online Survey Study: Testing the ATTR-QOL, a new questionnaire developed by ARC for ATTR amyloidosis
ARC, in collaboration with QualityMetric and Global Perspectives, is currently recruiting adults with ATTR amyloidosis in the United States to participate in an online survey study. This survey is being conducted to make sure a newly developed questionnaire that measures the symptoms and impacts of ATTR amyloidosis appropriately captures the impact of the condition. ARC and QualityMetric developed this questionnaire, the Transthyretin Amyloidosis Quality of Life (ATTR-QOL) Questionnaire, with input from patients, patient organizations, clinicians, researchers, and drug developers. We need to gather more data from patients so we can test and further improve the ATTR-QOL. The findings from this study may help to support the future use of the ATTR-QOL in doctor’s offices and clinical trials.
Participants will be asked to complete 2 surveys about a week apart. Each survey will take about 30-45 minutes to complete.
This study does not involve any treatments and participation is completely voluntary. Study participants will be compensated for their time completing 2 online surveys, up to $125 USD.
To find out if you are eligible, please click here:
