Research Roundtable
Identifying Opportunities & Priorities for Collaborative Research in Amyloidosis
January 19-21 | Miami, Florida
Creating consensus around the research priorities primed to increase the pace and efficiency of amyloidosis research that will most improve the lives of those with amyloidosis.
ARC is gathering global experts from academic, clinical, regulatory, health policy, and other key areas to create consensus around the unmet needs within amyloidosis and identify the research initiatives needed to ultimately improve patient outcomes. The key areas of focus include basic and translational research, advancing the science of clinical trials for AL and ATTR amyloidosis, and improving clinical care.
Roundtable Agenda
7:00 am
Breakfast
Miami Marriott Biscayne Bay
Room: Bayfront Terrace South
1633 N Bayshore Dr, Miami, FL 33132
+1 (305) 374-3900
8:00 am
Registration Opens
DoubleTree by Hilton Biscayne Bay
Room: Grand Ballroom
1717 N Bayshore Dr, Miami, FL 33132
+1 (305) 372-0313
8:30 am
Welcome and Introduction
Moderators & Speakers: Isabelle Lousada, Ashutosh Wechalekar, Sarah Cairns-Smith, Kristen Hsu
8:55 am
What Has Changed Over the Past 5 Years: Basic and Translational Research
Moderators & Speakers: Jeff Kelly, Stefan Schoenland, Basic/Translation Research Group
9:55 am
Break
15 minutes
10:10 am
What Has Changed Over the Past 5 Years: AL Amyloidosis
Moderators & Speakers: Morie Gertz, Vaishali Sachorawala, Shaji Kumar, Murielle Roussel, Jessica Vermeulen
11:10 am
What Has Changed Over the Past 5 Years: ATTR Amyloidosis
Moderators & Speakers: Mat Maurer, Marianna Fontana, Tom Brannagan, Rodney Falk, Paolo Milani, Pushkal Garg
12:10 pm
Group Photo
25 minutes
12:35 pm
Lunch
1 hour & 25 minutes
Miami Marriott Biscayne Bay
Room: Bayfront Terrace South
2:00 pm
Advancing the Science of Clinical Trials: AL Amyloidosis
Moderators & Speakers: Morie Gertz, Ray Comenzo, Stathis Kastritis, Vaishali Sanchorawala, Anita D’Souza, Angela Dispenzieri, AL Group
3:00 pm
Break
15 Minutes
3:15 pm
Breakout Session Sneak Peeks
Moderators & Speakers: Stephen Harding, Gareth Morgan, John Wall, Shaji Kumar, Ashutosh Wechalekar
3:35 pm
Hot Topic Discussion
Moderators & Speakers: Ashutosh Wechalekar, Sarah Cairns-Smith
4:00 pm
Adjourn
6:30 pm
Cocktails & Dinner
Bunbury Miami
55 NE 14th St, Miami, Florida 33132
+1 (305) 333-6929
7:00 am
Breakfast
Miami Marriott Biscayne Bay
Room: Bayfront Terrace South
1633 N Bayshore Dr, Miami, FL 33132
+1 (305) 374-3900
8:30 am
Chairman Summary
Moderator & Speaker: Ashutosh Wechalekar
Miami Marriott Biscayne Bay
Room: Watson Island (Level 2)
8:40 am
Advancing the Science of Clinical Trials: ATTR Amyloidosis
Moderators & Speakers: Rodney Falk, Spencer Guthrie, Adam Castano, Jeff Kelly, Sami Khella, Laura Obici, Kristen Hsu, Michelle Carty, ATTR Group
9:40 am
Breakout Session Sneak Peeks
Speaker: Marianna Fontana
9:50 am
Break
15 minutes
10:05 am
Improving Clinical Care: AL Amyloidosis
Moderators & Speakers: Ashutosh Wechalakar, Mat Maurer, Vaishali Sanchorawala, Paolo Milani, Angela Dispenzieri, Stathis Kastritis, AL Group
10:40 am
Improving Clinical Care: ATTR Amyloidosis
Moderators & Speakers: Ashutosh Wechalakar, Mat Maurer, Marianna Fontana, Adam Castano, Renée Bullock-Palmer, ATTR Group
11:25 am
Improving Clinical Care: Measuring & Monitoring Disease
Moderators & Speakers: Ashutosh Wechalakar, Mat Maurer, Rodney Falk, Jeff Kelly, Marianna Fontana, Sharmila Dorbala, Christina Quarta, Ray Comenzo, Laura Obici, Measure & Monitor Group
12:10 am
Improving Clinical Care: What Matters to Patients?
Moderators & Speakers: Ashutosh Wechalakar, Mat Maurer, Sabrina Rebello, Isabelle Lousada, Sami Khella, Renée Bullock-Palmer, Patient Care Group
12:55 pm
Lunch
50 Minutes
Miami Marriott Biscayne Bay
Room: Bayfront Terrace South
1:45 pm
Discussion
Federated Data Analytics: James Signorovitch
Introduction to Discussion Sessions: Sarah Cairns-Smith
2:00 pm
Discussion Sessions: Identifying the Unmet Needs
Group Leaders: Gareth Morgan, Mat Maurer, Ashutosh Wechalekar, Sharmila Dorbala, James Signorovitch
4:00 pm
Adjourn
7:00 pm
Cocktails & Dinner
Klaw
1737 N Bayshore Dr, Miami, Florida 33132
+1 (786) 344-3331
7:00 am
Breakfast
Miami Marriott Biscayne Bay
Room: Bayfront Terrace South
1633 N Bayshore Dr, Miami, FL 33132
+1 (305) 374-3900
8:00 am
Welcome
Moderator & Speaker: Isabelle Lousada
Miami Marriott Biscayne Bay
Room: Bayview Ballroom (Level 2)
8:05 am
A Look Back in History & Forward Into the Future
Moderator & Speaker: Giampaolo Merlini
8:20 am
Key Priorities in AL Amyloidosis: Advancing the Science of Clinical Trials
Moderator & Speaker: Morie Gertz
8:30 am
Key Priorities in ATTR Amyloidosis: Advancing the Science of Clinical Trials
Moderator & Speaker: Rodney Falk
8:40 am
Key Priorities in Improving Clinical Care
Moderators & Speakers: Ashutosh Wechalekar, Mat Maurer
9:05 am
Recommendations of Working Groups
Open Meeting
11:05 am
Summary: What Have I Heard?
Moderators & Speakers: Preston Dunnmon, Morie Gertz
11:25 am
Meeting Close
Moderator & Speaker: Isabelle Lousada
11:30 am
Coffee / Lunch / Adjourn
Platinum Sponsors
Gold Sponsors
To learn more please contact Reuben Langevin, Associate Director of Strategic Initiatives, at rlangevin@arci.org
