This webinar “Coffee Chat” style webinar is your chance to learn about the different programs and projects ARC has been working on in 2025! Hear directly from ARC staff how we are supporting patients and helping shape the future of amyloidosis. There was also an opportunity for questions and answers.
Original Presentation Date:
December 18, 2025
0:00 — Welcome
6:24 — Patient Support & Education
11:33 — My Amyloidosis Pathfinder (MAP)
17:11 — ARC Clinical Fellowship Program
23:03 — ASPIRE: Amyloidosis Stakeholder Partnerships for Impact, Reach and Equity
27:09 — Amyloidosis Project ECHO
29:20 — Q&A Session
29:39 — Are there any volunteering opportunities at ARC?
30:40 — How does MAP help patients curious about clinical trials?
31:41 — What’s the next step if I match a clinical trial on MAP?
32:47 — What exactly counts as my diagnosis date for amyloidosis?
33:28 — How do I decide if I should get a second opinion?
35:06 — What are the benefits of ARC’s “PEER Link” mentorship program?
37:34 — Why is ARC’s Clinical Fellowship Program so important?
39:20 — Why is ASPIRE a unique program?
40:23 — How does Amyloidosis Project ECHO help patients?
42:26 — Are there trainings for caregivers who want to learn more?
44:19 — Conclusion
Contact ARC:
Call +1 (617) 467-5170
Email ARC at support@arci.org
