Resources Category: Patients

Patients
Webinars
ARC Talks: Physical and Occupational Therapy – Managing Your Amyloidosis
In this patient webinar, Mayo Clinic's occupational therapist Sarah Dahlhauser, OTD, OTR/L, and physical therapist Sarah Boyd, PT, DPT, discuss exercise principles for maintaining mobility and function, and home modifications for improved safety for amyloidosis patients.
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Patients
Patients
Webinars
ARC Talks: Genetic Testing for Transthyretin Amyloidosis
Genetic counselors Emily Brown and Katelyn Swade give an overview of the science of genetic testing and the importance of genetic counseling for ATTR patients.   [embed]http://youtu.be/FSG2Or9ocKw[/embed]
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Patients
Patients
Voice of the Patient
Video: Voice of the Patient
In this video patients share their experiences of living with AL and ATTR amyloidosis. They discuss the needs for research, clinical trials and their dreams. This video was shared with the FDA in 2015 during ARC's Patient Focused Drug Development Meeting.
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Patients
Patients
Webinars
Webinar: Navigating work and amyloidosis (pre-register)
This webinar provides information on navigating work and amyloidosis. Covering the laws that can protect you as you work through treatment, taking job protected time off if necessary, and how to pay for time off. This webinar will be hosted on 7th November at 11am EST. Use link below to register.
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Patients
Patients
Webinars
Webinar: Choosing Healthcare Insurance 101
This webinar provides helpful information on what to consider when choosing a healthcare insurance plan. This webinar was hosted by Triage Cancer and funded by Alnylam Pharmaceuticals.
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Patients
Patients
Webinars
Webinar: Affording New Treatments
An informative webinar, led by speaker Beth Halpern, Partner at Hogan Lovells US LLP, providing a detailed explanation of the different pathways available to support patients in accessing these new treatments
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Patients
Patients
Discover Clinical Trials and Treatment Centers with My Amyloidosis Pathfinder (MAP)
Finding the best amyloidosis care is not easy. ARC created My Amyloidosis Pathfinder (MAP) to help you discover, learn about, and contact treatment centers and clinical trials that are right for you. By answering our short questionnaire, MAP is able to match you to centers and trials specific to your condition.
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Patients
Patients
Video: Clinical Trials 101
Have you ever wondered where medicines come from? Or how medicines are tested for efficacy and safety before becoming commercially available? Find out what clinical trials are and the purpose of this rigorous testing process. This video was produced as part of the Americans for Cures Foundation's Report Back to the Public.
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Patients

AMYLOIDOSIS RESEARCH CONSORTIUM, INC.
320 Nevada Street, Suite 210 Newton, MA 02460 USA | 617-467-5170
arc@arci.org

ARC is a 501(c)(3) nonprofit organization