Resources Category: Patients

In this ARC Talks webinar, Dr. Kelsey Barrell from the University of Utah explains what causes neuropathy and other neurological symptoms in amyloidosis patients and offers suggestions to help manage these symptoms.

Dr. John Clarke, a gastroenterologist and motility specialist with Stanford Medicine, covers everything that patients need to know about GI involvement and symptom management in amyloidosis, followed by a Q&A session.

Nancy Verel, a nurse at the Cleveland Clinic, shares her story about her family's journey through her husband's AL amyloidosis diagnosis and treatment. Robert David from BMC Cancer Support Programs provides coping and support strategies for caregivers.

This patient webinar provides detailed information about how to manage amyloidosis during the COVID-19 pandemic, including the International Society of Amyloidosis guidelines, high-risk patient considerations, clinical trials, and policy changes.

As many more provider visits are being conducted virtually, it is important that you are setup and well prepared ahead of time. This video will take you through all the steps.

In this patient webinar, Mayo Clinic's occupational therapist Sarah Dahlhauser, OTD, OTR/L, and physical therapist Sarah Boyd, PT, DPT, discuss exercise principles for maintaining mobility and function, and home modifications for improved safety for amyloidosis patients.

In this patient webinar, Dr. Heather Landau, a leading hematologist at Memorial Sloan Kettering Cancer Center, discusses current therapies, clinical trials, and symptom management strategies for patients with AL amyloidosis.

Genetic counselors Emily Brown and Katelyn Swade provide an overview of the science of genetic testing. They also discuss importance of genetic counseling for hereditary ATTR patients and their families.