Help ARC Serve You Better

I'd like to participate in the following as they become available:

ARC SurveysARC Surveys and studies are conducted throughout the year with the goal of understanding the experiences of patients and caregivers. The purpose of the surveys can vary from gaining perspectives on the journey to diagnosis to clinical experiences, evaluating the benefit versus risk that patients are willing to take with treatments, and other insights.

Focus Groups & Patient PanelsFocus Groups & Patient Panels can provide you with a unique opportunity to give input into shaping research. These forums may review planned research or assess the value of different types of treatments through the eyes of patients. This provides important insights and can lead to improvements in the research that is being done.

AdvocacyAdvocacy is a critical function of our work to improve and extend the lives of those with amyloidosis, and we need your help. We’d love to connect with you if you’re a patient or caregiver willing to be a subject of one of our patient story videos, speak at the Amyloidosis Forum or other amyloidosis events, or help raise awareness about these devastating diseases.

Other Research Opportunities

Are any of the following symptoms present:

Nerve symptoms (neuropathy)Cardiac symptoms (cardiomyopathy)Renal (kidney) symptomsGastrointestinal (GI) symptoms

Please provide any additional information you feel might be helpful for us to know regarding advocacy or research participation.
(If applicable: treatments received, resources that have been helpful to you, clinical trial experience or interest level, etc.)

Please list any non-English languages you speak

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Address details help us build future programs to better fit our community. Your information will not be shared.

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Providing demographic information helps ARC when applying for certain grants and will not be shared.

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(In mm/dd/yyyy format, please.)

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If there is anything else you'd like us to know, please leave a note here.

Help Us Serve You Better

Help Us Serve You Better