Exciting Plans Ahead for 2025!
We are committed to advancing our mission and driving the next generation of breakthroughs in the awareness, science, and treatment of amyloid diseases as we enter the 10th year of the Amyloidosis Research Consortium
We are working hard to improve and extend the lives of those with amyloidosis.
In 2025 our outreach and education programs will continue to inform and empower patients, families, caregivers, physicians, and researchers. Working with partners in pharmaceuticals, government, and academia, ARC will further spark the next generation of innovation and to help bring more promising treatments from labs to patients.
We are committed to collaborative efforts that accelerate the pace of discovery, expand patient access to the most effective care, and improve short- and long-term outcomes.
Supporting Patients
As a patient led organization, we understand how to support patients and caregivers. Our team is always here to support you.
MAP Pathfinder Tool
PEER Link
Amyloidosis Academy
ARC TALKS
Newletter, Blogs, & Videos
Patient Support
Driving Research
We are committed to pushing forward the community’s understanding and awareness of amyloidosis by highlighting patient experiences and accelerating approval pipelines to get more treatments into the hands of more patients.
Expediting Treatments
Amyloidosis Forum
Community Survey
Breaking Data Barriers
Powerful Partnerships
ATTR QOL
Increasing Awareness
Enhancing the speed and accuracy of diagnosis is crucial in all aspects of the amyloidosis community, including healthcare professionals. ARC designs and delivers Continuing Medical Education (CME) and Non-CME programs to increase early diagnosis in partnership with drug companies, scientists, and patients.
Since ARC was founded in 2015, we have helped make six life-saving treatments available to the patients who need them. Patients and caregivers need to know the options they have. That’s why we are building programs like our Treatment Availability Map to give the community the knowledge it needs.
Together with the EveryLife Foundation and hundreds of other patient advocates, ARC employees and amyloidosis volunteers will speak with Members of Congress in DC about how they can impact the lives of those with rare diseases. Come join us!
ARC’s physician education programs are raising awareness of red flag symptoms and tools leading to earlier diagnosis. Current treatments only slow progression. Earlier diagnosis is key to improving patients’ lives.
Knowledge is power and ARC makes sure to empower every patient we can through a variety of education and support. Our free educational booklets, support call line, teams of experts, and other pieces of our support network make sure patients are equipped to find the right treatment center for them, ask the right questions to their physicians, and live a better life.
Your gift to ARC brings us one step closer to a future free of amyloidosis.
ARC programs are made possible through the generosity of individual donors and our partners in the field of amyloidosis.
You can easily give online by clicking the button below, or if you prefer, send your donation to ARC at: Amyloidosis Research Consortium 320 Nevada Street, Suite 210 Newton, MA 02460. Your donation is tax deductible.
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