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ARC Talks Webinar: Navigating Care Choices at the End of Life
In this ARC TALKS webinar, Jill Waldron, NP and Rebecca Kirch will provide guidance on navigating care choice options for amyloidosis patients and caregivers during health decline. In addition to discussing the stages of amyloidosis progression, Jill will discuss the importance of end-of-life care, while addressing the challenges caregivers and patients may experience. Rebecca will provide tips for communicating with healthcare professionals, including recommendations for how to create an end-of-life care plan with a healthcare team. Rebecca will also...
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FDA Issues Complete Response Letter for Patisiran for Treatment of Cardiomyopathy of ATTR Amyloidosis
BREAKING NEWS: The U.S. Food and Drug Administration has issued a complete response letter for Alnylam Pharmaceuticals' Patisiran, an investigational RNAi therapeutic for the treatment of the cardiomyopathy of transthyretin-mediated (ATTR) amyloidosis. This letter denies approval for the treatment of cardiomyopathy of ATTR amyloidosis with patisiran after the Phase 3 APOLLO-B study met its primary and first secondary endpoint relative to placebo, as measured by the 6-Minute Walk Test (6-MWT) and the Kansas City Cardiomyopathy Questionnaire Overall Summary (KCCQ-OS) score....
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Knowing Your Rights: Understanding Health insurance Coverage
In this ARC talks webinar, Alicia Lawrence, Information and Resource Services Manager at the National Organization for Rare Disorders (NORD), discussed health insurance policies within private and government issued insurance.
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Corporate Organization Relations Policy
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