The Amyloidosis Forum: Advancing Drug Development in ATTR
The first generation of drug approvals in ATTR amyloidosis has reshaped the research landscape creating the need to reconsider how to effectively design trials against a backdrop of treatments that slow progression of the disease. This Forum meeting will set the stage by sharing the advancements, evaluating the impact and unmet needs that currently exist, and identifying key initiatives with the aim of leveraging cross-stakeholder resources to collaboratively act on field-shaping priorities. This meeting is open to the public, with...
ARC in the Field: Global Genes Health Equity Summit 2022
Special Report by: Dr. Lauren Edgar, DNP, RN, MSN-Ed., FNP Associate Director of Clinical Affairs and Education, Amyloidosis Research Consortium The 2nd Annual Global Genoese Rare Health Equity Summit in partnership with the Rare Disease Diversity Coalition took place November 9-11, 2022 in Atlanta, Georgia. “Of all the forms of inequality, injustice in health is the most shocking and inhumane.” — Martin Luther King Jr Calls to our patient phone line at ARC range from asking where the closest...
Overview of ARC’s Research Programs and Results of the Patient Community Survey
In this ARC Talks webinar, Kristen Hsu, Executive Director of Research, and Sabrina Rebello, Research Manager, provide an overview of ARC’s research programs, share findings from our 2022 community survey results, and highlight the future direction of ARC’s research.
Join our email list to stay up to date on the latest Amyloidosis news.
In this ARC Talks webinar, Kristen Hsu, Executive Director of Research, and Sabrina Rebello, Research Manager, provide an overview of ARC’s research programs, share findings from our 2022 community survey results, and highlight the future direction of ARC’s research.
Original Presentation Date:
January 26, 2023
Key Webinar Highlights:
0:00 – Welcome and Introduction
4:45 – ARC’s Approach to Research
7:00 – ARC’s Public-private Partnership with the FDA: The Amyloidosis Forum