Clinical Psychologist Rosalind Kalb, PhD shared helpful advice, self-care tips, and real-life strategies to make daily life a little easier for both Care Partners and loved ones. Linnie, an amyloidosis Care Partner, also shared experiences and perspectives from her own life.
Whether you’re new to caregiving or have been doing it for a while, this session will support you and hopefully remind you that you’re not alone.
Original Presentation Date:
October 15, 2025
0:00 — Welcome
3:04 — Introduction
6:04 — “We” vs “Me”
7:38 — What is a “Care Partner?”
13:35 — Why you need to “put on your own oxygen mask first”
23:00 — Tips for Surviving and Thriving
31:08 — Conversation with Linnie, a Care Partner
31:34 — What does “self-care” look like for Linnie?
33:50 — How do I handle all the focus being on someone else and no one worrying about me as a Care Partner?
36:19 — Why is it hard to talk about our own feelings and needs?
38:52 — Does the person you’re caring for ask how you’re doing as a Care Partner?
40:34 — How to jumpstart a conversation about a “we” vs “me” disease
45:01 — Q&A Session
45:27 — What advice would Linnie give herself at the start of her Care Partner journey?
46:47 — Sometimes I feel like an alarmist as a Care Partner. How do I handle that?
50:14 — How can a Care Partner build a strong support system you feel comfortable asking for support from?
53:07 — What does a Care Partner do if a patient isn’t doing everything the doctors say they should be doing?
55:08 — How did Linnie educate her network about the amyloidosis diagnosis?
57:30 — Conclusion
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