In this ARC Talks webinar, Kristen Hsu, Executive Director of Research, and Sabrina Rebello, Research Manager, provide an overview of ARC’s research programs, share findings from our 2022 community survey results, and highlight the future direction of ARC’s research.
Original Presentation Date:
January 26, 2023
Key Webinar Highlights:
0:00 – Welcome and Introduction
4:45 – ARC’s Approach to Research
7:00 – ARC’s Public-private Partnership with the FDA: The Amyloidosis Forum
10:42 – ARC’s Patient Reported Outcome Measure
13:43 – ARC’s Community Research Program
16:36 – 2022 Community Survey Results
26:20 – Growth in Community Survey Results
27:40 – ARC’s Future Direction of Research
30:07 – How to Stay Involved
32:55 – Q and A Section
52:47 – Thank you and Close
