Resources

Amyloidosis Research Consortium Cardiac Amyloidosis Survey: Results from Patients with AL and ATTR Amyloidosis and their Caregivers, was presented at the XVIth International Symposium on Amyloidosis from March 26-29, 2018 in Kumamoto, Japan. This poster presents results from 699 patients and caregivers and highlights the complex and burdensome diagnostic journey in amyloidosis.

The white paper contains the highest priorities and a research framework for the systemic amyloidosis diseases. This consensus document was developed through a rigorous process with the participation of 71 international experts from academic, clinical, regulatory, patient advocacy, health policy, industry, and other key areas. This publication is intended to identify, improve and accelerate a drug development pathway for the systemic amyloidosis diseases.

Medscape is the leading online global destination for physicians and healthcare professionals worldwide with the latest medical news and expert perspectives; drug and disease information; and professional education and CME classes specific for amyloidosis.

This easy-to-use pocket card identifies “low voltage” EKGs in combination with ECHO images of increased ventricular mass, which are very specific for amyloid and should trigger additional testing to confirm amyloidosis.

Free CME Credits Expert presentations by: Giovanni Palladini, MD PhD and Mathew Maurer, MD

This webinar covers access to innovative new therapies through expanded access programs with guest speakers Jennifer Miller, PhD, Assistant Professor at Yale University School of Medicine and Alison Bateman-House, PhD, MPH, Assistant Professor at NYU School of Medicine.

A comprehensive report submitted to the FDA in 2016 by ARC. This is a detailed summary of the patient testimony presented at the Patient-Focused Drug Development meeting. This report will serve a critical function in communicating to both FDA review staff and industry the improvements that patients want and hope to see in their daily lives.    

Published: Leukemia, July 2016 | Author: G Merlini et al.