Resources
ARC provides patients and healthcare professionals with the latest, up-to-date resources to
help improve treatment and care of patients with amyloidosis.
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AL Amyloidosis
Webinars
Webinars
Clinical Trial Updates for the AL Community
ARC's own Kristen Hsu presented the most current updates for the clinical trial landscape, with a focus on AL amyloidosis. Kristen also discussed the direction future research.
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AL Amyloidosis
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Library
Hereditary ATTR Amyloidosis
Patients
Hereditary ATTR Amyloidosis
Patients
Understanding Genetics in Hereditary ATTR Amyloidosis
There are over 120 different mutations that have been identified in the TTR gene and as research continues, it is possible that more may be discovered. Each mutation causes a different pattern of disease onset, symptoms and outlook.
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Library

AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
GI Disturbances and Symptom Management
Dr. Sara Horst discussed how amyloidosis can impact the gastrointestinal tract, GI symptoms, and symptom management.
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AL Amyloidosis

Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Clinical Trial Updates for the ATTR Community
ARC's own Kristen Hsu presented the most current updates for the clinical trial landscape, with a focus on ATTR amyloidosis.
Read More
Webinars

AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Physical Therapy for Amyloidosis Management
Physical therapists Kelsi Schiltz, and Katie Johnson provided recommendations for managing neuropathy symptoms.
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AL Amyloidosis

AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Visualizing Amyloidosis: The Role of Imaging
Dr. Sharmila Dorbala explained the role that medical imaging techniques play in both diagnosing and managing amyloidosis.
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AL Amyloidosis

AL Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Other Types of Amyloidosis
Devices for Heart Improvement
Amyloidosis cardiologist, Dr. Mazen Hanna discusses the function of implantable, electronic devices in cardiac management of amyloidosis patients.
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AL Amyloidosis
Publications
The Transthyretin Amyloidosis – Quality of Life (ATTR-QOL) Questionnaire: Development of a Conceptual Model and Disease-Specific Patient-Reported Outcome Measure
O'Connor, Hsu, Broderick, McCausland, LaGasse, Rebello, Carty, Lousada (2023)
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Publications