Resources

The Amyloidosis Research Consortium's Executive Director of Research, Kristen Hsu, discussed the current clinical trial landscape in AL amyloidosis. She reviewed trials currently recruiting patients, trials expecting to share results this year, and trials that are planned to open in the future.

Clinical Psychologist Rosalind Kalb, PhD shared helpful advice, self-care tips, and real-life strategies to make daily life a little easier for both Care Partners and loved ones. Linnie, an amyloidosis Care Partner, also shared experiences and perspectives from her own life.

Dr. Sami Khella, Professor of Neurology and co-founder of the Amyloidosis Program at the University of Pennsylvania discussed the latest in diagnosis, treatment, and management of neuropathy and amyloidosis.

ARC Executive Director of Research Kristen Hsu presented an overview of the different approaches to treating ATTR amyloidosis, as well as the most current updates for the clinical trial landscape, with a focus on ATTR trials.

Dr. Jan Griffin, amyloidosis cardiologist at the Medical University of South Carolina, discussed how ATTR affects the heart and explored advances in treatments for ATTR-CM.

This white paper summarizes advancements in the field, key challenges, and consensus priorities for the amyloidosis research community that were identified and discussed by attendees of the 2024 ARC Research Roundtable Meeting. The information presented in this paper represents the opinions and outlooks of the global amyloidosis experts.

Sabrina Rebello, ARC's Senior Research Manager, presented an in-depth overview of key insights from our Annual Community Survey. This webinar focused on understanding the experiences of patients and caregivers throughout their diagnostic journey and ongoing care.

Lovley, A., Hsu, K., LaGasse, K. et al. Reliability and validity of the Transthyretin Amyloidosis – Quality of Life (ATTR-QOL) Questionnaire impact scales. J Patient Rep Outcomes 9, 44 (2025). https://doi.org/10.1186/s41687-025-00880-7