Resources
ARC provides patients and healthcare professionals with the latest, up-to-date resources to
help improve treatment and care of patients with amyloidosis.
Publications
Peripheral Nervous, Hepatic, and Gastrointestinal Endpoints for AL Amyloidosis Clinical Trials: Report from the Amyloidosis Forum Multi-organ System Working Group
Mauermann, M.L., Clarke, J.O., Litchy, W.J. et al. Adv Ther (2023)
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Publications

Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Kidney Disease Presentation in Amyloidosis
Dr. Nelson Leung focused on renal involvement in AL, AA, ALECT2 and ATTR amyloidosis, while discussing treatment and response assessments for each type.
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Webinars

Webinars
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Hereditary ATTR Amyloidosis
Wild-Type Amyloidosis
Cardiac and Neurological Approaches in ATTR Management
Dr. Nativi-Nicolau and Dr. Elizabeth Mauricio discussed the decision pathway in management of ATTR amyloidosis from the cardiac and neurological standpoint.
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Webinars

AL Amyloidosis
Webinars
Webinars
Approaches to Treating Relapsed and Refractory AL Amyloidosis
Dr. Heather Landau discussed current treatment options for relapsed and refractory AL amyloidosis patients.
Dr. Landau also talked about the current testing methodology used to monitor a patient’s disease status, and the role maintenance therapy may play in the management of relapsed AL amyloidosis.
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AL Amyloidosis

Webinars
Hereditary ATTR Amyloidosis
Hereditary ATTR Amyloidosis
The Fundamentals of Clinical Trials and Current Advances in Amyloidosis Research
Dr. Morie Gertz gave a 101 overview of clinical trials, including consideration in how they are designed, and the phases needed for drug development.
Dr. Gertz also discussed current clinical trials that are evaluating the next generation of drugs for the treatment of AL and ATTR amyloidosis.
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Webinars
Publications
Health-Related Quality of Life Instruments for Clinical Trials in AL Amyloidosis: Report from the Amyloidosis Forum HRQOL Working Group
Rizio AA, White MK, D’Souza A, Hsu K, Schmitt P, Quock TP, Signorovitch J, Lousada I, Sanchorawala V. Health-Related Quality of Life Instruments for Clinical Trials in AL Amyloidosis: Report from the Amyloidosis Forum HRQOL Working Group. Patient Relat Outcome Meas. 2023 May 18;14:153-169. doi: 10.2147/PROM.S399658. PMID: 37229285; PMCID: PMC10202704.
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Publications
Tools
Physicians
Physicians
ARC Diagnostic Algorithm
This quick summary of common "red flag" amyloidosis symptoms and diagnostic algorithm can help understand the steps in a traditional path to diagnosis and amyloidosis type determination. This tool should not be used to replace proper medical guidance and diagnosis, but can be helpful for understanding your journey to diagnosis.
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Tools

Webinars
Hereditary ATTR Amyloidosis
Hereditary ATTR Amyloidosis
Hereditary ATTR Amyloidosis: The Role of Genetic Testing and Recommendations for Genetic Carriers
Cardiologist Dr. Ahmad Masri MD, MS and genetic counselor Emily Brown, MGC, CGC discuss the role of genetic testing in hereditary ATTR amyloidosis care, along with providing disease management recommendations for genetic carriers.
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Webinars