Announcing our Educational Booklet Series!
Quality and reliable information has always been a focus of the Amyloidosis Research Consortium (ARC). When patients are first diagnosed, it’s hard to know where to turn to learn about your options and what may lie ahead. (more…)
ARC Launches HTA Toolkit for Patient Advocates
ARC has published a Health Technology Assessment Toolkit to equip patients and patient groups within Europe, as well as globally, with the tools to advocate on behalf of themselves and other patients for access to new treatments. (more…)
ARC attends inaugural AfPA meeting
On February 8, 2020, ARC’s Manager of Healthcare and Education, Lori Bulpett, attended the inaugural Rare Disease Working Group Meeting, hosted by the Alliance for Patient Access (AfPA), in Washington, DC. The meeting's focus was on amyloidosis and the various...
ARC’s Inaugural Masterclass a Success!
In early January, ARC hosted its first Masterclass, 'Mastering the Art and Science of Amyloidosis.' Over 75 healthcare providers were in attendance for the broad range of topics and comprehensive training, taught by leading amyloidosis experts. (more…)
ARC is Poised for Great Things in 2020
2019 was a year of great accomplishments for the Amyloidosis Research Consortium (ARC), and we are grateful to all of you who have so generously supported our efforts to accelerate the pace of development of drugs to treat and improve...