Blogging to Raise Awareness of Amyloidosis
To highlight amyloidosis during rare disease week this year Isabelle Lousada, president and CEO of the Amyloidosis Research Consortium, was invited to provide a guest blog for PhRMA publication The Catalyst. Isabelle talks about the experiences that led her to...
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Launching the Industry Advisory Council
On 23rd February 2016, under the leadership of Mike Zelin, the ARC’s Director of Industry Relations, we held the first meeting of the ARC Industry Advisory Council. This groundbreaking meeting brought together key leaders from seven pharmaceutical companies. These companies...
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A Landmark Year for ARC
 A New Era, Creating A New Model The launch of the Amyloidosis Research Consortium (ARC) earlier this year was in direct response to this pivotal moment in the history of amyloidosis. With potentially effective therapies for amyloidosis on the horizon,...
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Patient Forum with FDA
The Amyloidosis Research Consortium (ARC) held an amyloidosis patient forum with the FDA in Silver Spring, MD on November 16. 2015.  It was an historic, standing room only event for our community. The room was filled with patients that were...
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AL Amyloidosis: Patient Experience Published
533 patients took part in our survey earlier this year and it has given some very valuable insight into the experiences of patients with AL and ATTR amyloidosis. The information has been shared at a number of key medical meetings...
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