News

 A New Era, Creating A New Model The launch of the Amyloidosis Research Consortium (ARC) earlier this year was in direct response to this pivotal moment in the history of amyloidosis. With potentially effective therapies for amyloidosis on the horizon,...

The Amyloidosis Research Consortium (ARC) held an amyloidosis patient forum with the FDA in Silver Spring, MD on November 16. 2015.  It was an historic, standing room only event for our community. The room was filled with patients that were...

This poster detailed the experience of hereditary ATTR and wild-type TTR amyloidosis patients. It outlines the significant challenges for obtaining a correct diagnosis and access to appropriate therapy. The poster was shown at the 1st European Congress on Hereditary ATTR...

Amyloidosis Research Consortium Calls For Regulators To Adopt New Surrogate End Point For Pivotal Clinical Trials In Patients with AL Amyloidosis Cardiac functional biomarker is a validated end point used universally by amyloidosis specialists to determine treatment outcomes and to...

Amyloidosis Research Consortium is hosting a critical meeting with the FDA in Bethesda on November 16th, 2015. This is an unprecedented opportunity: patients can inform the FDA about their experience and unmet needs. At the FDA's request, amyloidosis experts will...