News

Special Report by: Dr. Lauren Edgar, DNP, RN, MSN-Ed., FNP Associate Director of Clinical Affairs and Education, Amyloidosis Research Consortium   The 2nd Annual Global Genoese Rare Health Equity Summit in partnership with the Rare Disease Diversity Coalition took place...

Earlier this month ARC announced the launch of ASPIRE: Amyloidosis Stakeholder Partnerships for Impact, Reach, & Equity. This initiative, independently facilitated and governed by ARC, brings together 10 different biotech & pharmaceutical companies committed to making a real impact in...

Special Report by: Dr. Johana Fajardo, DNP, ANP-BC CHFN FHFSA Infiltrative Cardiomyopathy Director, MedStar Washington Hospital Center; Chair of ARC Amyloidosis Nurse Collaborative   The XVIII International Symposium on Amyloidosis (ISA) took place September 4-8, 2022 in Heidelberg, Germany. The...

  Today the Amyloidosis Research Consortium (ARC), a patient-led research organization for amyloidosis diseases, announces the launch of ASPIRE: Amyloidosis Stakeholder Partnerships for Impact Reach and Equity, a collaborative of biotech and pharmaceutical companies committed to advancing solutions, improving diagnosis...

The American Association of Heart Failure Nurses (AAHFN) hosted its 18th annual meeting June 15-17, 2022 gathering nurses, care providers, industry sponsors, and other stakeholders for three full days of heart failure-related research, scientific, and programmatic knowledge-sharing. The ARC education...