Archives: Resources

To wrap up 2024, this month’s ARC Talks Webinar consisted of a conversation with ARC staff. We shared highlights from 2024, started to look ahead to 2025, and answered your questions about the work we do for the amyloidosis community.

The webinar concluded with a Q and A session.

Original Presentation Date:
December 18, 2024

0:00 — Intro

2:01 — Shaping ARC’s Purpose

5:03 — Research Overview

7:28 — The Amyloidosis Forum

9:23 — Healthcare Professional Survey

10:40 — Amyloidosis Community Survey

14:00 — CASE: Community and Stakeholder Engagement Overview

17:09 — Patient Support & Patient Programs

20:05 — Healthcare Provider Programs

23:54 — My Amyloidosis Pathfinder (MAP)

26:44 — ASPIRE: Amyloidosis Stakeholder Partnerships for Impact, Reach and Equity

31:29 — Development & Communications Overview

35:51 — Communications Highlights

38:36 — Development Highlights

40:48 — Q&A Session

41:43 — How do I stay informed about amyloidosis clinical trials?

43:43 — What can do if I’m too well for a clinical trial?

47:03 — What can be done for rarer types of amyloidosis?

50:36 — How does ARC engage with healthcare clinics and treatment centers?

52:48 — How does ARC impact rare diseaes public policy?

54:24 — How can people help ARC and the amyloidosis community?

56:25 — Concluding Remarks

Contact ARC:

Call +1 (617) 467-5170

Email ARC at support@arci.org