News

ARC has published a Health Technology Assessment Toolkit to equip patients and patient groups within Europe, as well as globally, with the tools to advocate on behalf of themselves and other patients for access to new treatments. (more…)

On February 8, 2020, ARC’s Manager of Healthcare and Education, Lori Bulpett, attended the inaugural Rare Disease Working Group Meeting, hosted by the Alliance for Patient Access (AfPA), in Washington, DC. The meeting's focus was on amyloidosis and the various...

In early January, ARC hosted its first Masterclass, 'Mastering the Art and Science of Amyloidosis.' Over 75 healthcare providers were in attendance for the broad range of topics and comprehensive training, taught by leading amyloidosis experts. (more…)

2019 was a year of great accomplishments for the Amyloidosis Research Consortium (ARC), and we are grateful to all of you who have so generously supported our efforts to accelerate the pace of development of drugs to treat and improve...

The inaugural Amyloidosis Forum took place on November 12th, 2019 at FDA’s White Oak Campus in Silver Spring, MD. We could not have hoped for a better turnout, a more spirited and productive discussion. (more…)