News - Amyloidosis Research Consortium

November 5, 2019

ARC Developing a Disease-Specific PRO Tool for Patients with ATTR Amyloidosis

ARC is developing a patient-reported outcome (PRO) measurement tool in ATTR amyloidosis to be used to understand and measure the impact of the disease on patients from the patient’s perspective. (more…)

November 5, 2019

Amyloidosis Masterclass: The Art and Science of Managing Amyloidosis

The Amyloidosis Research Consortium (ARC) is excited to announce the first in a series of physician education “Masterclasses” to take place on January 10, 2020 in Dallas, TX. (more…)

November 5, 2019

ARC News

Giving Tuesday – an opportunity to give back

Giving Tuesday, December 3rd, is your opportunity to support ARC’s investments in research that will speed up the development of drugs to treat amyloidosis. (more…)

October 18, 2019

The Amyloidosis Forum – bringing together the AL amyloidosis community with FDA

ARC is excited to announce the inaugural gathering of The Amyloidosis Forum on November 12, 2019 at FDA’s White Oak Campus in Silver Spring, MD. (more…)

September 23, 2019

ARC News

Blog post: ARC attends datasharing meeting

Data sharing. It is an important topic and there is a real need for it in our community. Data sharing encourages more connection and collaboration among researchers, which can result in important new findings within the field. (more…)