Today we sat down virtually with the newest member of the ARC team, Vanessa Boulanger who has recently joined ARC as the Executive Director of Strategic Partnerships. Vanessa brings over 15 years of experience centering cross-sector collaboration in pursuit of...
Vutrisiran receives Fast Track Designation from FDA
Alnylam has submitted a new drug application (NDA) to the FDA for vutrisiran, which could bring another treatment option to patients with ATTR amyloidosis. Vutrisiran received “Fast Track” Designation, which is a process designed to expedite the review of drugs...
From weeks to live to pioneering the Amyloidosis landscape
ARC's CEO, Isabelle Lousada, was told she had just weeks to live when she was diagnosed with AL Amyloidosis 25 years ago. A dedicated team of physicians at Boston Medical Center performed an experimental stem cell transplant, making Isabelle only...
Report From the Amyloidosis Forum Scientific Workshop
The Amyloidosis Forum, a Public Private Partnership with ARC and FDA, hosted the workshop on 22nd January, as part of an ongoing process to develop novel endpoints for clinical trial in AL amyloidosis. In 2020, the Amyloidosis Forum launched a...
Daratumumab has just been granted approval by the FDA for the treatment of AL Amyloidosis in the United States. Today marks a major milestone and an achievement that has been years in the making. Janssen applied for FDA approval for...
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In this ARC TALKS webinar, the dedicated team behind the transformative initiatives of ARC discuss the impactful work of the Leadership, Research, Development, Communications, and Community Alliance departments.
View the webinar recording to gain firsthand knowledge about the projects successfully accomplished in 2023 and get a sneak peek into the exciting new initiatives poised to shape our mission in 2024.
Original Presentation Date:
December 13, 2023
Key Webinar Highlights:
0:00 — Introduction
2:04 — ARC’s Background and History
4:45 — Shaki, Clinical Care and Education Associate
6:57 — Laura, Executive Director of Development
11:16 — Sabrina, Senior Research Manager
14:01 — David, Director of Strategic Programs, Engagement and Communications
18:53 — Kristen, Executive Director of Research
22:39 — Reuben, Associate Director of Strategic Initiatives