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One way to seek support is to attend a group meeting, whether for education purposes or for emotional support. Dena Heath, a member of ARC’s Board of Directors, hosts regular meetings through the Northern California Amyloidosis Support Groups which include the Greater Sacramento Area group facilitated by Mary Polo. Dena, along with facilitators from other area support groups...

August was Make A Will Month. Bill Johnston, an AL amyloidosis patient, has pledged a legacy gift to the Amyloidosis Research Consortium (ARC). Here's why.

When the life sciences companies working on amyloidosis come together, in a shared space and focused on shared goals, the whole field moves faster. Those are the needs ASPIRE was built to address.

Over 25 years in the field I have learned how to recognize when an organization is doing the work that truly makes an impact. When I had the chance to look closely at ARC, what I found was an organization doing exactly that.

May is Mental Health Awareness Month. For those living with amyloidosis, the psychological toll of a rare diagnosis is intense, yet often goes unnamed. The following story is about surviving a disease for two decades, as well as a map of spiritual and mental evolution.